Its the start of the weekend I’m in my own home and boy am I glad to be so. A few weeks ago I was in hospital with yet another infection. It started of I wasn’t feeling too good, said to my nurse I felt horrid, my tummy began to swell, my temp rose, the leakage that came out of around my peg site increased, the smell began to get really offensive. My energy became non existent. I visited my GP, within 2 hours I was in hospital. Before I knew it connected to IV drip and on IV antibiotics. I was feeling absolutely awful, could hardly put one foot in front of the other. The familiar face of SPB came to my bed. He is the surgeon that put my gastrostomy tube in two years ago. Lavita has been a lifesaver and fed me on demand. After blood tests, X-rays, scans and careful discussion with the surgeon and the wonderful dieticians Bev and Marion it was decided it was time to change the tube.
Im not going to lie, I was bloody nervous at the thought of getting lavita taken out and another tube put in. The nurse came to tell me that I was getting my tube changed later that day. just after lunch I could hear a familiar Irish mans voice outside my bedroom. A few minutes later the doctor popped his head round the door, remember me Elizabeth? He said. How could I forget. He was the doctor that took out my jej extension. I have faith in him. My nervousness left me and I felt calm. How could I forget, I replied. He changed my gastrostomy tube. I’m not saying it was plain sailing. Mainly due to the infection, I had a lot of tummy pain and there was quite a lot of discharge and blood. There was a lot of tugging and pulling. The burning gastric acid from my stomach was trickling down my skin, it hurt like hell. He mopped it up very quickly. The saliva was running down my gums, yet my lips and mouth felt dry. We agreed that a larger circumference tube would go in this time, in the hope that there will be less leakage. We have moved up a size and a half and its fitted perfectly. I was in hospital for 5 days, and got well looked after, support from dieticians, nursing staff, and doctors fantastic.
Its took me a while to get on my feet since getting out of hospital. I have been very tired, in fact super exhausted to be exact. Regular things have taken a back seat and gosh have I missed it all. In particular not having the granddaughters at the house as often. A couple of weeks before I went into the hospital our house was full of laughter of two beautiful granddaughter’s. Our 17 month old princess was running up and down the hall saying Papa Papa, Broom Broom – she is desperate to go sit on her grandfather’s motorcycle. Grace calls from the kitchen Bella Boo to one of our labs. The girls are away on a two week holiday at the seaside. Gosh I miss their visits.
Since I have been home, I am getting my regular visits from my nurses. Getting my tube maintained, The balloon water changed. My dressings changed. Working hard on building up the old stamina 🙂
The one important thing that needs to be done next is find a name for my new tube. Its a balloon gastrostomy that feeds me through a pump directly into my tummy. Im attached to the feed 20 hours out of 24 every day. This prevents me having a hypo and helps me maintain my weight. My wonderful hubby has bought me a lovely new Michael Kors leather backpack to put my pump in, it means I can be attached to my feed, carry it on my back and still be ‘fashionable’ as well as carry other essentials with me.
If you have any suggestion of a name for my new tube, please comment. All suggestions, comments welcome.