Im so happy to be home. I feel free from the clinical walls of the ward. When I walked into our home on the Friday evening I really hoped to myself this would be it, I would be home now till out patient appointments. Certainly no more in stay hospital visits for a while. I missed my home life. Since October my abode was a hospital address – it felt like a lot longer and I am feeling like things in my life are slipping me by. Life is hard enough for everyone. When you have a chronic illness you learn to live your life as a different ‘normal’ but when you have a chronic illness and something else is thrown into the mix – such as I was in hospital for all those weeks, or worse still when I also was so ill with the damn infection I didn’t know what day of the week it was. Life gets even more difficult and complicated.
As human beings we all have difficulties to deal with in everyday life, and it’s all difficult in its own way. And sometimes one problem can lead to another. Steve and I had our sons in our early twenties, we had to be careful with money when they were toddlers, however, we did our best and they always knew they were loved. We learnt a lot from that period in our life. Some people have relationship problems. Others it’s their job. I personally believe the biggest stress on a person, relationship or a family is illness. It can put a terrible emotional stress on anyone at a moments notice. It can cause such upset and anxiety. Anger. Financial stress. The worst feeling in the world can creep up on you: loneliness.
Who gets lonely when sickness strikes? Whether I’m at home or in hospital I have people around me – it’s still possible to feel on your own when you are surrounded by others. At times you just feel no one understands how you are feeling or what this damn disease does to you. I may be talking to someone and they hear my voice but are they actually listening to what I’m saying. Whilst I was in the hospital I missed my home and my family terribly . Although everyone in the hospital is in the same boat – at times you can feel rather isolated and alone. For my hubby loneliness came in the form of actually physically being on his own. The duration of my hospital stay. Steve was at home on his own with the two Labradors. His routine was taking care of himself, the dogs, the business, and running back and forth to the hospital to see me. He never felt he had enough hours in the day. He never once complained about being tired but you only had to glance at him to see he was exhausted. As he walked into the ward in a sluggish manner rather than his long confident strides, he had dark circles under his blood shot eyes. And as we discussed our day’s events he yawned several times through the conversation; quite unlike Steve, who is always usually full of beans and ready to take the lead. After visiting at 8pm Steve would leave the hospital with my washing and head for home. There would be plenty to keep him occupied. Something on TV, house chores, the dogs, paperwork, returning the answer machine messages. Steve would text me as soon as he got home, quite often we would send each other several messages back and forth and chat as if we were in the same room, one evening Steve video called me whilst I was in the hospital , it was great whilst I was in my hospital bed I was also in my front room. Watching my dogs reaction as they heard me call their names was fantastic. Steve and I are used to doing most things together. So the reality of it is when Steve came home from the visiting he did all the necessary – but longed for it not to be needed. And me to be home. He said the old cottage was quiet and empty, and despite him having so much to do he was bored. Steve sent me a text one evening and in part of the contents was the words the house is lonely, cold and quiet without you……..I miss you. These words helped me get better quicker. They made me feel wanted and I knew exactly how he was feeling.
The knock on effect of illness is huge –
well meaning people get in touch to ask how everything is. Which is lovely, however, sometimes the added pressure of calls and texts can take its toll, other times they are just what you need.
Financially: I could go on forever – extra trips to hospitals, parking, fuel, Washing, time of work – or no work at all. Need I go on.
Upset and anxiety. There are days you just want to cry, everything and anything you feel or say is wrong for that moment. That day you can’t put your foot over the doorstep.
I feel I’ve been fortunate I’ve never been too angry. Always tried to turn a negative into a positive. And thankfully anxiety is not something that has got a hold of me. I take every day as it comes and what comes with it. I have learned to treasure what I have in life. Be grateful for all the good things I do have, and believe me there are many good and happy events surrounding me. Sure I can’t do everything I used to be able to do. And certainly I don’t move around as quick as I once did. I have adjusted my lifestyle accordingly. What we used to do in a day perhaps takes us a week. The outing, the trip to the shops and the visit to friends was once done in one day now I have to do things in stages and they will be spread over three days with a day or two in between for a rest day. My pace of life has altered accordingly – slowed down considerably. Steve and I have wonderful Sunday afternoons together. And evenings by the fire chatting. We take time for each other and converse. And it’s wonderful, I love it. ❤️❤️. We perhaps now see things, do activities and sit and talk like we would never have imagined. So while it can be lonely and stressful there are still many plus points. For me I can honestly say that after all these years my hubby and I still really do love each other. We have two sons, we love very much and we are grandparents . My thoughts – life is for living and enjoying. Sure it can be hard. But isn’t it difficult for everybody at sometime. I believe if something is worth having it is worth fighting for – such is life.