Acts of kindness during Covid restrictions


Our new normal way of life can be difficult to live with at times, but we have to remember it is for our own good. People in various areas have different rules. Depending on where you live, what you do for a living and how your health is determines what you can and cannot do. What has made my life so much easier throughout this difficult period are Acts of kindness during Covid restrictions https://www.gov.uk/coronavirus

In the last few months I have sat back and read my social media pages, looked at what my ‘friends’ have written. Some posts have been entertaining and cheered me up, others have been sad and have made me grateful for what I have in my life.

Since the beginning of the restrictions I have been privileged to get thoughtful gifts, letters by post, flowers, texts, telephone calls, emails, FaceTime calls, etc. For this I would like to say thank you.

My most wonderful husband has been an ultimate star throughout. He has worked running his busy business as well as chasing after me, catering to any whim I may have. I try my best to be self sufficient, but I will admit I need by knight in shining armour to take charge in times of need. Steve has done such lovely cheer up things; my most favourite jeans started to get worse for wear, he sought out online not only a pair of my likeable Levi 501 in waist 23, but even managed to get the extra short leg – boy was I beaming. I’m always a freezing cold human bean – so delivered a pair of slippers wool slipper boots with a rubber soul from Denmark Oh my goodness my feet are so warm now.

My children, Tony and Stuart, their other halves and my grandchildren have been ultimate stars. Telephoning, FaceTime calls, texting, sending photos, etc. Nothing better than an excitable FaceTime call telling me all about their day. Love getting the progress news how the university is coming along. Getting texts saying morning Granny how are you? hope you have a good day, love you xxx. Make me feel so loved and warm inside. Video progression of the grandchildren makes me smile, sometimes laugh, always warms my heart and most definitely helps for not getting the visits like we used to.

Faithful Buddy

My sister Hazel sends me letters and cards by post. Its so lovely when I hear the postman drive up our chipped driveway, the crunch of the stone chips as he stops. He get out as usual and puts the mail through the door. Faithful Buddy goes with me to get whats arrived. I recognise my sisters writing, in the envelope is a card and some beautiful photographs of my grandchildren, myself, my lads, and my Dad. She tells me how much she misses coming to see me, our sisterly blethers on the sofa with the dogs at our feet. Some days thats just what we all need to hear. To know how much we are loved.

Cards from Hazel, flowers from Louise

Friday is chat with Jenny day. We met the first day at university and have been firm friends since. I so miss her coming over to visit at the moment with the restrictions being on a tighter leash at the moment. Fingers crossed they will change for the better and she will be able to visit soon. We could meet up outside, but for me its too cold. So for now, texting, whats app and Friday chat day will suffice.

I message and get messages from my sister, Helen and brothers Albert and Brian. We chat regularly keep each other up to date. So miss seeing my Daddy Bear.

One of the grand puppies


On top of the people already mentioned, there are an array of family and friends that have been supportive, giving me a phone, dropping a text, sending a message, etc, etc. Examples include My niece Lindsay sends me the most loving messages and photos of the children, love that girl right over our rainbow. Long time sister pal Liz and I talk on the phone and send each other messages. Sally, little toots from http://www.salspals.co.uk sends the most wonderful cheer up messages and photos of Harley boy. Louise messages me every day, love the photos of Gunner and Harris, received beautiful lilies the other day from her. I miss her popping in for a cuppa and us having a natter. Every morning I get a text message from minister friend Janice. We share other messages throughout the day and a couple of times per month we chat on the phone. Janice is inspirational and caring. Diane and Mark have been keeping me updated with stunning photos of Buddy and Bella’s grand puppies.

Social media is a great point of communication for any of us. Even if it’s just for 10 minutes looking down ones timeline to find out what’s going on in the outside world. I enjoy sharing information and have fun & banter with fellow members, from our Harley Davidson group at The Dunedin Chapter http://Www.dunedinhog.com. I have made great friends at the Chapter. Steve and I have missed out on going to bike events this year, however we are keeping up the chat with our buddies on Facebook I also get support from Scotland’s Net Cancer Charity, http://www.taect.scot for now they offer zoom meetings, online chat, quiz, Facebook page. I really miss seeing my pals, we text each other personally too and catch up on each other’s news. There really isn’t any need to be lonely if you are willing to work at it.

There was an act of kindness that touched my heart at the beginning of August that will stay with me forever. My nurse Evelyn that comes in to the house is an absolute trooper. All the nurses that come to the house are fabulous. My amazing nurses change my dressings, tend to my gastrostomy tube, give injections, flu jabs, my octreotide treatment. Health wise they do anything and everything. One day at the end of July when I was chatting to Evelyn I told her I thought I would look online and see if I could get a washable colourful cotton face mask. We blether about all sorts of things, sometimes it’s good to talk away from health, not about me, just about life, having some fun, ‘the doing things’ . The following week Evelyn came to our house. It was a Wednesday, full service day. Gastrostomy checked, balloon water changed, dressings changed, etc. And then a big beauty of a needle for my octreotide treatment. After everything was done and dusted. Evelyn lifted her jacket under it was a present. Beautifully wrapped and in a lovely little presentation bag. This is for you, she said as she handed me the bag. I eagerly looked in. The most delightful handmade cotton face masks. Matching children and adult ones. And ever so special to me zebra ones. What an absolutely thoughtful gift. Someone who is working full time in such a strained and stressful environment, in these difficult times. Taking time out to make the masks touched me. Made me feel very happy. They are useful, look great and I really like them.

My granddaughter Alex and me in masks made by Evelyn

Since March life has put on a different hat. We have had to learn a new normal. I’m a glass half full gal. I so appreciate the people in life that have made my life so much easier by the generous acts of kindness during Covid restrictions. Please remember when you are sitting on social media watching a video, or your feet up glued to a soap opera on Tv – think about dropping a mate a text, or give them a call just to say hi. Five minutes out of your day can make someone’s a really special one.


































































































































































































































































































































































































































































Bagged his first munro

Several months in since Covid first hit us. Our way of life has changed and we have began to look for a new normal. Living life at a different pace. Shopping, working, educating; finding a way that works for us to go about our business safely and hopefully happy. Social distancing – meeting with others safely. Trying our best to get that balance of seeing others, getting out in the outdoors but making sure that we are safe at the same time. We live in the country in our delightful detached cottage, no neighbours, not a street light on our little single track road, not even a cats eye. However, what we have noticed is an increase in people walking passed the house. Obviously they must be taking their daily exercise and what a lovely place to do it. There has been a lot of awful news since covid hit the headlines. Since the middle of March and the big lockdown happened, I feel there has been a lot of heartache and we have had many sad and tragic events to deal with. Couple of weeks into September and I got a message which made me smile from ear to ear, it was to let Auntie Lizzie know that 10 year old Louis Bagged his first munro.

I was beaming, a very proud great auntie. Louis had climbed Ben Chonzie with his Dad Stephen. Lindsay, my niece, and Stephen are fabulous parents. Okay I am biased, but they are. The three children all have handled the situation with coronavirus very well, they very much missed school and the youngest one Patrick started primary one and eldest Sophie started high school. Big year. For some time they could not attend church and that was another blow to the family. Louis is my son, Tony’s God son. All three children normally attend some sort of activities. Louis in particular loves to go to the football and support Celtic with his Grandad and Dad, he enjoys boxing and training at the local club. All this has been taken away. Lindsay and Stephen have not been down trodden. I have been sent the funniest videos. They have set up assault courses in their garden. The children ran round the course and one of the parents would set the stop watch. Their dog Lubo would join in. Fantastic family fun, while gaining exercise, stopping the boredom and learning a few things at the same time – pulse rate, etc. The children soon got the exercise bug and they began family walks, cycles and adventures. Until one day Stephen asked Louis if he would like to train to climb a munro. He explained what a munro was. He told him that a munro is a mountain that is over 3000 foot tall and that there are 282 across Scotland. They decided to attempt to climb Ben Chonzie together. Which they did. They took the dog, had an amazing day. I am so proud of Louis, to climb a munro is difficult, it takes stamina, this young chap was 10 years of age when he bagged his first munro.

Louis and Lubo at the summit of Ben Chonzie

And so the munro bagging continued. My son Stuart and fiancé Laura climbed Ben Chonzie. They had a wonderful time, it was unusual for them to be without the children and only have Hudson, the fox red Labrador with them. You can normally see them out cycling the bikes with the children in tow. Or all of them walking in the forrest all set for an adventure. How I love to get FaceTime calls telling me of the adventures they have had cycling along the forrest track or taking the dog a walk. So young and full of energy. I’m sure when 4 year old Alexandra’s legs are up to it she will be mad keen to get up a Scottish mountain. Get the camera out and take the most superb photographs of our beautiful country and amazing scenery.

Ben Chonzie

Stuart & Laura – Ben Chonzie

Laura & Hudson

A wee bit about Ben Chonzie. Gaelic name Beinn a’ Choinnich – meaning mossy mountain. Situated near Crieff in Perthshire. The great Scottish solitary mountain reaches a height of 3054 feet and rises between Strathearn and Loch Tay. Its a super first climb with a fairly straight forward heather clad route of 9 miles, which tends not to be steep but with rather more moderate inclines and leads to beautiful open country, which is ideal for this current situation when we are needing to social distance. Plenty of space for everyone, even the dogs.

All this talking of climbing has taken me back to pre neuroendocrine cancer days. Life before carcinoid syndrome and days with super duper energy when running up a mountain was Childs play. In the year of 2000 my husband Steve, my brother in law Alan, my sister Hazel (Louis’s gran) and quite a few of our friends were led up Ben Lawers by our friend Gordon Macleod. We raised quite a few quid for cancer charity that weekend. Great fun was had by all. It was the first May bank holiday weekend, I can remember sliding on the snow, what great fun we had. Lovely evening at the Kilin Hotel that night too, the Irish whisky after dinner I can recommend. https://www.killinhotel.com

Alan, Hazel, Steve & Me at the summit of Ben Lawers Year 2000

Louis loving his first climb

Leaking gastrostomy tube

Lavita has been my lifesaver. For those who don’t know Lavita is the name of my gastrostomy feeding tube. Artificial feeding is a way of life for me; feeding tubes, syringes, dressings, huge deliveries of feed by my lovely drivers from Nutricia, etc. For the last few months I have been having a bother with my tube, my nurses have been coming in, giving the usual service, changing water in balloon, etc. However, I have had a lot of leakage (losing water from my balloon ) I have been in an awful lot of pain and three times the balloon has burst. Lavita has been a leaking gastrostomy tube.

Last week I went for a ct scan with contrast at the request of my net consultant. He is worried because my 5hiaa is elevated, I’ve lost weight, been getting a fair few infections and I haven’t been feeling well at all.

This week I have been at the hospital to see one of my consultants. He was able to speak to me about my ct scan and finally shed light on why I have been loosing water every week. And perhaps why I have been in so much pain. He asked me to get onto the couch, he Kindly helped me up, he assisted me off with my shoes, I couldn’t bend down comfortably from the couch and get my shoes off, he could see that so bent down and took my shoes off for me.

I lay flat on the couch and he said Mark requested the CT scan for a totally different reason the problem we are going to discuss and he started to explain what the radiologist reported on the CT scan. The report stated the balloon should be sitting in my stomach, however it is sitting in my jejunum. The doctor decided he would reposition it there and then. Are you ok? he said, I nodded, my tummy was aching. Just breathe in he said to me, and I will get this adjusted and make you more comfortable. He gave a very firm tug on the tube and turned it around, he pushed it into place and gently twisted it round. He pulled the disc tight up to my skin and said the tube needed to be at 4cm. And to check and adjust it several times per day. He is hoping now that he has pulled the balloon back up into my stomach that I won’t leak water any where as much as I have been. Some weeks, my nurse puts 20mls of water in when it comes to the water change there is only 7mls of water in the balloon.

My gastrostomy balloon had fallen into my jejunum.

I got myself decent, he helped me off the couch and onto the chair beside his desk. We now had time to discus what he did, how my gastrostomy tube looked on the scan and how I was feeling. How am I feeling? rubbish, hope to feel better soon….. My doctor did me a drawing of how the tube should be and how mine was when I got the scan. He told me I should get blood tests today; the nurses with a bit of a fight took my blood.

Today I got an email from my other consultant; my net specialist. The one that ordered the CT Scan. He said he was shocked when he read the report that my balloon of my gastrostomy tube was in my jejunum. He asked how I was feeling and said he was relieved that I had seen my other consultant Alan and that he had repositioned it. The prof said he is hoping that the leakage will slow down now that I have had my tube pulled up.

I feel privileged to have very caring consultants that look after me so well. Especially take time to email me out of hours, or give me a call and ask how I am. Thats what I call service.

The Drawing by my consultant