Over the last few months life has certainly had its up and downs. As usual getting the usual carcinoid syndrome treatment. Not feeling the best at times and all that comes with it. However on the plus note covid restrictions have been a lot better, I have seen my family much more, Steve has been on the Harley-Davison®. We managed an evening out to see Del Amitri live in Edinburgh, at the Queens Hall. Our youngest son graduated from university. I got head hunted for a job from a very reputable company. We have a lot to be grateful for. As I was sitting working on my computer my phone gave a familiar bing. I looked over, it was letting me know my screen time was down. Most likely because I have been writing more this week, and I have gave the social media platform Facebook a wider berth over the last few weeks; mainly due to seeing the same old…… Although I have to confess I did see a few things on it today that made me smile, and other things that put me off…… on reading down the page I thought what has made me smile today?
Firstly waking up and being alive makes me smile. Every day is a bonus. I love where I live and who I live with. I open the curtains, roll up the blind in the morning, look out my bedroom window and the view of my back garden is a huge field where I enjoy walking my loyal Labrador Retrievers.
My boy Buddy is my assistance dog. He takes great care of me. Knows when my glucose levels drop. When my heart is misbehaving. He was such a great chap and tapped my nurse on the knee on Wednesday when she was attending to me, I asked her to check her blood sugar level it was sitting at 3.9 – he knew she was hungry.
My family not only make me smile they make me laugh. We have fabulous times together. Play old fashioned games, sit and talk, sing together, dance in the house and most importantly love each other.
Writing keeps me sane as well as makes me smile. Jotting down in a diary, keeping a journal, and writing for a living. I simply love it.
Listening to music most definitely made me smile today. Whether it is music on Apple Music, reminiscing about times gone by, Steve strumming his Martin guitar and beautifully singing along or Alexandra practicing her heart out on the violin or getting a guitar lesson from her Grandad. All those tunes give me such a warm feeling inside. It made me remember about that time……well will keep this one to myself…….
Remembering yesterday, listening to stories about the trip out pumpkin picking and dancing around the house and face painting.
My Labradors are content at our holding. Buddy never really leaves my side, goes wherever I go, literally with me into the bathroom, etc. The clever clogs knows when my unusual body is playing up and despite having my peg feed on my blood sugars drop and he comes to my assistance. He knows when my heart is banging so hard I can feel it pounding. Buddy is a wonderful assistance dog to me, my right hand boy. He wanders around the house, pads up and down the long hall. If I was to put a pedometer on him I could imagine his step count each day just in the house, never mind the garden would be pretty high. Bella gets a free reign to. They love their runs in the back field, especially with granddaughter Alexandra. However, when my sister Hazel said she had booked www.unleasheddogparks.co.uk for Buddy, Bella and her young border collie Jed I never anticipated what was in store – a fabulous afternoon at the dog park
Unleashed dog park is only literally a three minute drive from our home in Boggs Holdings, Pencaitland. It provides a wonderful safe environment to let your dog run free and get plenty of exercise. There are great quality equipment for the dogs to play on, a sensory area, a sandpit.
The massive bonus for us is you drive your car into the field you will be using. With my health the way it is, I’m certainly not up to walking my babies a long walk. Places like the dog park in my area are just perfect for a treat. They enjoy running around as they do on our wide open fields but with the added extras of the sensory garden, the equipment to climb on. A fabulous and safe place to train or treat your pampered pouch.
My only disappointment was photography is a huge passion of mine and I neglected to take my Nikon camera with me I took all my photos on my phone. Don’t get me wrong I was really pleased with the results on my Apple
Since March 2020 life has been a funny old world for us all. The arrival of Coronavirus and the devastating effects it has had on us. Many of us have had life changing situations and learned to live with a new normal. We have lost people we love, heartbreakingly not been able to be with them in their hour of need. Staff have courageously battled on through conditions many have never seen before. For all the dedication of workers, volunteers, families, friends, loved ones, etc I thank you. Without the help and love of others it’s difficult to see the light at the end of the tunnel.
Now sitting writing this on this Thursday morning in April 2021 in my sitting room, I feel a whole lot more positive than I did this time last year. The vaccine is going well. Yes we are concerned about blood clots, but that’s a whole different story and I believe the benefits outweigh the risks. The restrictions are lessening here in Scotland.
My District Nurse, Jennifer was in yesterday she commented how peaceful and relaxing our home is. I told her yes with my carcinoid syndrome fatigue is a huge problem as well as nocturnal diarrhoea so quietly listening to music and writing is relaxing and helps a great deal. Buddy and Bella help too. Snuggling up on the sofa with my Labradors can be just what the Doctor ordered.
The stressful year has affected us all. For me the best way I cope is having my glass half full not empty. Taking the dogs to the dog park such as Unleashed helps blow away the cobwebs. It benefits both the human beans and the K9s.
If you haven’t been to a dog park before and you are swithering, give it a try, Buddy is ten years old, Bella eight and my sister’s border collie, Jed is only nine months. They all had an amazing time. Got home tired out and I’m sure they are looking forward to their next visit.
It’s coming up to the final Saturday in March and here in the UK we are all going to lose an hours sleep. We usually associate lack of sleep with things like stress, or going on a night out, or maybe the baby has kept us up crying. But this time we are getting told YOU WILL HAVE ONE HOUR LESS THROUGH THE NIGHT LIKE IT OR NOT. Are most of us going to complain about this? Heck NO! Why, it’s British Summertime. This Saturday we will spring forward.
Since March 2020 for many of us life has been pretty difficult one way or another. We have had many an incident to try us. Covid-19 struck and the world has never been the same again. Worldwide 125 million have been diagnosed with covid, 2.75 million people have died from covid. Countries have been in lockdown, many of us still have restrictions. Businesses closed, lots of folks unable to work or changing their way of working and working from home or making adjustments to their workplaces to ensure the safety of the workforce and customers. Education has been a huge challenge for both students and staff. Everyone in life feeling some sort of pressure in some way or another.
What we have to remember is everything that has been done is in the interest of all of us. When we have been told to stay at home it is for our own good and to help save lives. The vaccine is being rolled out and ticking along nicely. The elderly, frontline workers and the vulnerable were the first to get their injections. Now centres are busy working round the clock making sure we all get immunised.
As the beautiful daffodils dance in the March winds, they bring hope and I believe happiness. Our front garden has many daffodils. As the dogs run up the grass and the sun shines down on them as they pass them you can’t help but feel a warmth in your heart, even on a cool day. Yesterday my sister Hazel and my 5 year old granddaughter Alexandra walked my Labradors. They all had a lovely time. Including me; I maybe wasn’t on the walk, however I so enjoyed hearing about it when they came back and loved to see my delightful labs looking so happy. Tails wagging franticly, bottoms wiggling and big doggie cheesy smiles.
Hubby Steve came back home and Alexandra was very excited to see her Papa. Out she went and jumped on the lawn tractor. And rode up the garden, her beautiful curly hair naturally blowing back showing her delightful smiling happy face. Afterwards she came striding back to the house, grinning from ear to ear with a bunch of daffodils in her hand from the garden; won’t they look nice in the window Granny, Alexandra said with pride. And how right she is.
Tonight I will be going to bed, and setting any manual clock one hour ahead. Big benefit in UK is daylight saving. Next weekend is Easter. I’ve got a busy week ahead, stoma nurse specialist video call on Monday, big discussion and specialist training to get discussed. Specialised training to get booked in. My nurses will be in on Wednesday for Gastrostomy full service, dressing change and octreotide injection.
Lets hope the weather starts to get warmer, and life will certainly start to look an awful lot brighter for all of us.
For many 2020 has been a difficult year, and certainly for most a memorable one; it has been a year like no other I have known. My hubby and I spent Hogmanay at home on our own. Just the two of us with our beautiful Labradors. This was the first time ever we have been alone to bring in the year and say Hello 2021.
I must say although very different from our usual ceilidh, our last night of the year was a fun packed one. We took part in a family and friends Zoom quiz. Stephen organised it. A busy young Dad with three kids; Stephen and son Louis were quiz masters. We had participants from near and far. Laughing, joking and talking was definitely allowed. We didn’t come first in the quiz but did not disgrace ourselves. Looking forward to the next one.
We are one week in to the new year. Eventful already.
The balloon on my gastrostomy tube burst on Hogmanay. Wonderful efficient staff, it was changed immediately. Six days later the tube was loose, my dressing was drenched. My ever dedicated medics attended to me, yes the balloon on the just short of one week old tube had exploded once again. Nicola changed my tube and then gave me my octreotide injection. This was then a day for complete rest.
To be honest despite the feeling unwell, and the pain. I have enjoyed being home. Sitting by the open fire with my beautiful labradors. Writing and editing. We are in a second lockdown. Yes, it’s a worrying time and I so miss being able to go see my Dad. Strange times my family and friends not coming to my house for a visit. We have to remember these restrictions have been put in place for our own good, to prevent infection from spreading and a big plus point is that we have a vaccine that is getting rolled out to the general public. It will take a while but as time allows we will be able to go out more, visit and one day in the future live a “normal life”.
For some life has been more challenging. It may be they are a key worker and things are getting tough. The usual “go to” place has gone, and talking with others feels trivial. Please try and remember this when someone is looking a little more weary than normal, or talking less than usual, ask how they are – it goes a long way. When a person says they are fine, it doesn’t mean they are doing well.
During this lockdown children at present have to stay home and get home schooled. For many families this works well. But for some life is hard. In many homes there are more computers, laptops, tablets than human beings in the house. In other homes there is one unit in the home or perhaps none at all. When the children are home schooling they get work from their teachers, there are programs on television. The internet plays a vital part in a child’s education. Hence the importance of a piece of equipment to get on the World Wide Web. It’s heartbreaking to think that in this day and age of digital technology that some families lack that availability in their own homes. If you have a laptop, computer, iPad, tablet that’s surplus to requirements please think about handing it in for someone else to use. There is always someone in your area that can use it. You can find out more about recycling your products Here
Whilst the restrictions carry on I will continue with my Content Writing and Editing work. I am so lucky that I enjoy doing it. Photography is my passion. For the time being I am pleased enough with taking photographs in our garden, snapping images of things in the house, pointing and shooting my beloved Nikon at my Labradors, I think they feel like fashion models. Although my husband’s Harley is a great bike for taking photos of. Today was a grand day. I sat at my desk in front of my computer, did work on a newsletter. Then took some photos of a little visitor out our back garden. I’m sure he will be a regular visitor. A beautiful little Robin.
A couple of years ago when my granddaughter then 2 had her first playdate at our house with my very close friend, Danielle’s daughter, Ella both girls played and had fun like all toddlers do. However as young as Alexandra was at the time she was caring and compassionate enough to notice that Ella was different from her. Ella is deaf, she has cochlear implants. Little did I know this first playdate would lead to us Sponsoring a hearing dog.
The girls at that young age played in the sitting room with toys and formed a bond. Two years later they are running up and down my hall laughing and shouting with dolls in their hands. When Ella left with her mum and dad Alexandra asked me about Danielle and us being friends. I told her we have been friends for a very long time, and told her you look after each other no matter what when you are good friends. I told her Danielle sends me messages and phones me to ask how I am. She visits. We all have fun, and now brings Ella to come see her. We spoke about Ella’s deafness, she said it must be horrible not being able to hear everything all the time Granny I am so sad for her. I told her not to be sad and look at how happy Ella is with her family and when she plays at ours. I think this helped.
It was raining on a Saturday afternoon and Alexandra was visiting with her Dad. She likes to be like Granny and type a story on the laptop. I had been on social media just prior to her going to use my laptop. She takes a seat beside me, she patiently waits till I close my pages. On the timeline of my facebook page there was an advertisement for Hearing Dogs for Deaf People. Oh look Granny, a Labrador like yours, but its black, says Alexandra. This stops me in my tracks. I look at what she is noticing. I close the page and let her type away.
Later that evening I go on the site Hearing Dogs for Deaf People and sponsor the black Labrador Winnie. This money will go towards training the puppy and will help change a deaf person’s life.
Alexandra now has a beautiful little cuddly pup with the familiar maroon jacket on. As soon as she opened the box she looked at all the paperwork quickly, lovely photos Granny. She quickly takes out the cuddly dog, runs along the hall and comes back with a stethoscope we need to check this puppy over. She loves the idea of having a notebook book and pen, so like my Mother. The certificate and postcards are brilliant. Alexandra has already looked up the website and seen other photos of Winnie and progression videos, her out walking, etc. It’s fantastic. Helping the charity, putting a good dog to work and most importantly helping someone who needs it – match them up with a dog and giving them valuable lifelines at times, for example Winnie will alert her new owner if the smoke alarm is going off, if there is a sound coming from the baby monitor.
I know how much I value my labradors. My lad, Buddy knows when my cancer is misbehaving. When my blood sugar has dropped too low. If my heart rate is wonky. Carries my feed items. Bella the companion Labrador, she is a treat to have, carries clothes to washing machine. Carries items along our 40 foot hall. Some days it can be a long walk for me.
If you have ever thought about sponsoring a dog I can highly recommend it. As someone who depends on a dog I know how valuable they are. I also live with a hubby that has issues with his eyes. He has had 10 surgeries to his eyes for detachment to his retina. He really is extraordinary. He pushes himself. Tries hard, still works, has a wonderful vision in life.
Our new normal way of life can be difficult to live with at times, but we have to remember it is for our own good. People in various areas have different rules. Depending on where you live, what you do for a living and how your health is determines what you can and cannot do. What has made my life so much easier throughout this difficult period are Acts of kindness during Covid restrictions https://www.gov.uk/coronavirus
In the last few months I have sat back and read my social media pages, looked at what my ‘friends’ have written. Some posts have been entertaining and cheered me up, others have been sad and have made me grateful for what I have in my life.
Since the beginning of the restrictions I have been privileged to get thoughtful gifts, letters by post, flowers, texts, telephone calls, emails, FaceTime calls, etc. For this I would like to say thank you.
My most wonderful husband has been an ultimate star throughout. He has worked running his busy business as well as chasing after me, catering to any whim I may have. I try my best to be self sufficient, but I will admit I need by knight in shining armour to take charge in times of need. Steve has done such lovely cheer up things; my most favourite jeans started to get worse for wear, he sought out online not only a pair of my likeable Levi 501 in waist 23, but even managed to get the extra short leg – boy was I beaming. I’m always a freezing cold human bean – so delivered a pair of slippers wool slipper boots with a rubber soul from Denmark Oh my goodness my feet are so warm now.
My children, Tony and Stuart, their other halves and my grandchildren have been ultimate stars. Telephoning, FaceTime calls, texting, sending photos, etc. Nothing better than an excitable FaceTime call telling me all about their day. Love getting the progress news how the university is coming along. Getting texts saying morning Granny how are you? hope you have a good day, love you xxx. Make me feel so loved and warm inside. Video progression of the grandchildren makes me smile, sometimes laugh, always warms my heart and most definitely helps for not getting the visits like we used to.
My sister Hazel sends me letters and cards by post. Its so lovely when I hear the postman drive up our chipped driveway, the crunch of the stone chips as he stops. He get out as usual and puts the mail through the door. Faithful Buddy goes with me to get whats arrived. I recognise my sisters writing, in the envelope is a card and some beautiful photographs of my grandchildren, myself, my lads, and my Dad. She tells me how much she misses coming to see me, our sisterly blethers on the sofa with the dogs at our feet. Some days thats just what we all need to hear. To know how much we are loved.
Friday is chat with Jenny day. We met the first day at university and have been firm friends since. I so miss her coming over to visit at the moment with the restrictions being on a tighter leash at the moment. Fingers crossed they will change for the better and she will be able to visit soon. We could meet up outside, but for me its too cold. So for now, texting, whats app and Friday chat day will suffice.
I message and get messages from my sister, Helen and brothers Albert and Brian. We chat regularly keep each other up to date. So miss seeing my Daddy Bear.
On top of the people already mentioned, there are an array of family and friends that have been supportive, giving me a phone, dropping a text, sending a message, etc, etc. Examples include My niece Lindsay sends me the most loving messages and photos of the children, love that girl right over our rainbow. Long time sister pal Liz and I talk on the phone and send each other messages. Sally, little toots from http://www.salspals.co.uk sends the most wonderful cheer up messages and photos of Harley boy. Louise messages me every day, love the photos of Gunner and Harris, received beautiful lilies the other day from her. I miss her popping in for a cuppa and us having a natter. Every morning I get a text message from minister friend Janice. We share other messages throughout the day and a couple of times per month we chat on the phone. Janice is inspirational and caring. Diane and Mark have been keeping me updated with stunning photos of Buddy and Bella’s grand puppies.
Social media is a great point of communication for any of us. Even if it’s just for 10 minutes looking down ones timeline to find out what’s going on in the outside world. I enjoy sharing information and have fun & banter with fellow members, from our Harley Davidson group at The Dunedin Chapter http://Www.dunedinhog.com. I have made great friends at the Chapter. Steve and I have missed out on going to bike events this year, however we are keeping up the chat with our buddies on Facebook I also get support from Scotland’s Net Cancer Charity, http://www.taect.scot for now they offer zoom meetings, online chat, quiz, Facebook page. I really miss seeing my pals, we text each other personally too and catch up on each other’s news. There really isn’t any need to be lonely if you are willing to work at it.
There was an act of kindness that touched my heart at the beginning of August that will stay with me forever. My nurse Evelyn that comes in to the house is an absolute trooper. All the nurses that come to the house are fabulous. My amazing nurses change my dressings, tend to my gastrostomy tube, give injections, flu jabs, my octreotide treatment. Health wise they do anything and everything. One day at the end of July when I was chatting to Evelyn I told her I thought I would look online and see if I could get a washable colourful cotton face mask. We blether about all sorts of things, sometimes it’s good to talk away from health, not about me, just about life, having some fun, ‘the doing things’ . The following week Evelyn came to our house. It was a Wednesday, full service day. Gastrostomy checked, balloon water changed, dressings changed, etc. And then a big beauty of a needle for my octreotide treatment. After everything was done and dusted. Evelyn lifted her jacket under it was a present. Beautifully wrapped and in a lovely little presentation bag. This is for you, she said as she handed me the bag. I eagerly looked in. The most delightful handmade cotton face masks. Matching children and adult ones. And ever so special to me zebra ones. What an absolutely thoughtful gift. Someone who is working full time in such a strained and stressful environment, in these difficult times. Taking time out to make the masks touched me. Made me feel very happy. They are useful, look great and I really like them.
Since March life has put on a different hat. We have had to learn a new normal. I’m a glass half full gal. I so appreciate the people in life that have made my life so much easier by the generous acts of kindness during Covid restrictions. Please remember when you are sitting on social media watching a video, or your feet up glued to a soap opera on Tv – think about dropping a mate a text, or give them a call just to say hi. Five minutes out of your day can make someone’s a really special one.
Today is a special day. It’s the anniversary of the wedding of my hubby, Steve and me. We got married in August 1986. A lot of water has gone under the bridge since then. We have had amazing fabulous times, laughed so much it hurt. Gone to so many lovely places together, shared many happy times and learned to love, live, cry and smile every day. Although life hasn’t always been easy, and there have been turns in the road that have tried our strength. We have always had each other to come home to, share the burden and lighten the load. I feel very happy to have my husband as my Best Friend
Steve and I are proud of our two children and we are pleased to have beautiful grandchildren. It’s a tremendous feeling to have such little ones warming our hearts.
Our home is a happy one filled with love, laughter and most definitely plenty of chatter. Steve and I at home with two loyal labradors, Buddy and Bella. Regular welcomed family visitors keeping us on our toes and entertained. Never a dull moment in our household.
Never a dull moment in our household. On the day we got married; Friday 22 August 1986 – I woke up and realised I didn’t have an appropriate pair of shoes to wear. Steve and I jumped on his Honda Superdream and went into Edinburgh for a pair. The sales assistant asked if she could help, I told her I needed a pair of shoes for a wedding, when i explained I was the bride she was taken aback. She said I hope the groom is more organised. I laughed and said to her maybe you want to ask him and nodded my head in Steve’s direction, as he stood at my side. Oh my isn’t it bad luck to see each other before the vows. We will take our chances we said. THIRTY FOUR YEARS LATER I COULDN’T LOVE MY HUSBAND ANY MORE THAN I DO TODAY.
Most of my regular readers with be familiar with Buddy and Bella my labradors. Buddy is my assistance dog, knows when I’m especially not too great, when the old sugar levels have taken a dip, he alerts me to take the appropriate action. He knows when the old ticker is playing up, the irregularity is a bit of a pain, sometimes the palpations are bangning through and I know that my heart rate is racing, however, when the blood pressure has dropped dangerously low, Buddy knows before anyone. Bella is his wife. And a great couple they are. My life is never been dull with my amazing beautiful fox red boy labrador Buddy and delightful loyal golden girl Bella.
The day I decided to breed them did not come lightly. Both my babies have great pedigrees. Exellent temperments and I had the confidence that they would produce fantastic puppies. However, there is always the worry – will my bitch be ok? how will the puppies be? The hard work it involves. I didnt want just to have the puppies and leave them in a room. I wanted them to be socialised, toilet trained, etc. Which would most definitely be a lot of hard work. Looking after my girl through pregnancy, sitting up with her during labour and helping look after the pups till good homes were found.
Soon Bella was pregnant, quickly she was a little barrel. We made her a breading box, gave her a room all to herself, so that when the pups were born, she would have peace and quiet. Time passed quickly and the pups were born. Dad was on hand, sat all the way through the labour. On the first of March 2015, 8 beautiful puppies were born.
This is the 8 Puppies
Bella & pups 1st March 2015
Eight healthy puppies looking for new homes. Ive got to admit I was apprehensive letting the puppies go. Leave us and stay with what to them would start of as strangers. As well as the folks phoning me asking questions, I asked them questions too. Good homes were imperitive. All prospective new owners came to view the pups, made a decision, had the opportunity to see them twice again before finally getting the pup at 8 weeks. One young lady that telephoned was called Sally. She already owned a labrador, a horse and lived with her Mum. Both of them worked, but it appeared that their work hours would suit perfectly.
First visit they were fair taken with the pups. They chose the lightest coloured pup, and told us his name would be Harley. Little did we know our friendship would grow into one of the best, all I can say is It started with a puppy
This is Harley
Harley is three weeks old here
The weeks flew in that we had the puppies. Buddy and Bella’s romance grew. And the puppies soon went from mums breast to porridge to puppy feed. I socialised them a great deal. Let them run around the house. Our hall is very long they ran along it daily when they were able. They played with toys, got used to the noise of the vaccuum, washing machine, etc. Let them get used of children and people.
Over the period of a week the puppies went to their new homes. When Harley went to his new home, his went to live with Sally and Marie. Sally worked at Edinburgh airport, two minutes from her home, The hours worked in great with her mums and Harley soon settled quickly with the resident labrador Cooper.
I am very fortunate that all my puppy owners have kept in touch with me and I know how they are doing and where they are. Harley is a very lucky boy. Harley grew up in a very loving environment with the company of the other dog to help him guide him on his way. He also had a great, firm however very loving and loyal owner in Sally.
The love and enjoyment Harley gave had a huge impact. It actually was the turning point in Sally’s life when she changed her journey. And started a whole new career. She started dog walking and dog day care. Her Mum Marie is very proud of her, its a big step moving on from employment to self employment; and making a success of it is admirable. You reap what you sow….. Marie your hard work has flourished. And beautiful Harley is the proud resident Labrador of Salspals.
You can find out much more at their website Sal’s Pals
Anytime I need Buddy or Bella looked after Salspals is the place I choose for my precious labradors to go. Whether its for a hospital stay and I’m forced to stay in due to treatment or an infection and my hubby has comittments that leave the babies at home all day, we will use the services. Or most definetly when I am feeling tickety boo and we manage a travel trip, especially on the harley davidson, and meet up with friends from the http://www.dunedinhog.com to attend a harley davidson ralley. Sally does a tremendous job of making you feel welcome, she really does love the dogs. And our dogs undoubtedly enjoy their time at Salspals. Their daycare is tailormade to your needs. Salspals is special.
Salspals is in an exciting period they are moving to their new premises; this is a fantastic new time for the business. It will allow the dogs to rest in comfortable and safe surroundings. Run around in a safe and secure area. However, dont worry there will still be plenty walks on the cards for our four legged friends.
Life is short and most certainly precious. We have to look out for those that we care for and those who care for us. The familiar sound in my house is the padding of Labrador feet at my side. Buddy and Bella are never far from me and that’s how I like it. The first time I left Buddy I don’t know who was more upset, it was like leaving a child at the school gates. I could hear him whimpering. In the 5 years I had him we had never been apart. Not for one night. When I left my tummy was in turmoil. I felt tears pricking in my eyes. Phone in my bag, so wanted to reach for it and call and say I would come get him. Not that I knew what I would do with him, it was 10pm and I was due at the airport at 5am. 10.45pm my mobile made a familiar sound it was a text with an image of Buddy and Bella on the sofa cuddling in. At 4-30am I received another one to say they were both ok, and asked how I was. When I landed there was a text and photo waiting for me. Then I knew my babies were going to be ok, in fact I knew they were going to have a great time.
Its the start of the weekend I’m in my own home and boy am I glad to be so. A few weeks ago I was in hospital with yet another infection. It started of I wasn’t feeling too good, said to my nurse I felt horrid, my tummy began to swell, my temp rose, the leakage that came out of around my peg site increased, the smell began to get really offensive. My energy became non existent. I visited my GP, within 2 hours I was in hospital. Before I knew it connected to IV drip and on IV antibiotics. I was feeling absolutely awful, could hardly put one foot in front of the other. The familiar face of SPB came to my bed. He is the surgeon that put my gastrostomy tube in two years ago. Lavita has been a lifesaver and fed me on demand. After blood tests, X-rays, scans and careful discussion with the surgeon and the wonderful dieticians Bev and Marion it was decided it was time to change the tube.
Im not going to lie, I was bloody nervous at the thought of getting lavita taken out and another tube put in. The nurse came to tell me that I was getting my tube changed later that day. just after lunch I could hear a familiar Irish mans voice outside my bedroom. A few minutes later the doctor popped his head round the door, remember me Elizabeth? He said. How could I forget. He was the doctor that took out my jej extension. I have faith in him. My nervousness left me and I felt calm. How could I forget, I replied. He changed my gastrostomy tube. I’m not saying it was plain sailing. Mainly due to the infection, I had a lot of tummy pain and there was quite a lot of discharge and blood. There was a lot of tugging and pulling. The burning gastric acid from my stomach was trickling down my skin, it hurt like hell. He mopped it up very quickly. The saliva was running down my gums, yet my lips and mouth felt dry. We agreed that a larger circumference tube would go in this time, in the hope that there will be less leakage. We have moved up a size and a half and its fitted perfectly. I was in hospital for 5 days, and got well looked after, support from dieticians, nursing staff, and doctors fantastic.
Its took me a while to get on my feet since getting out of hospital. I have been very tired, in fact super exhausted to be exact. Regular things have taken a back seat and gosh have I missed it all. In particular not having the granddaughters at the house as often. A couple of weeks before I went into the hospital our house was full of laughter of two beautiful granddaughter’s. Our 17 month old princess was running up and down the hall saying Papa Papa, Broom Broom – she is desperate to go sit on her grandfather’s motorcycle. Grace calls from the kitchen Bella Boo to one of our labs. The girls are away on a two week holiday at the seaside. Gosh I miss their visits.
Since I have been home, I am getting my regular visits from my nurses. Getting my tube maintained, The balloon water changed. My dressings changed. Working hard on building up the old stamina 🙂
The one important thing that needs to be done next is find a name for my new tube. Its a balloon gastrostomy that feeds me through a pump directly into my tummy. Im attached to the feed 20 hours out of 24 every day. This prevents me having a hypo and helps me maintain my weight. My wonderful hubby has bought me a lovely new Michael Kors leather backpack to put my pump in, it means I can be attached to my feed, carry it on my back and still be ‘fashionable’ as well as carry other essentials with me.
If you have any suggestion of a name for my new tube, please comment. All suggestions, comments welcome.
Wow its been a while since my fingers have tapped out a post. To say I haven’t jotted down anything would not be true. However, everything I have written recently has been very personal and Im not quite ready to share these thoughts.
It’s the beginning of July the last post was published in March. Quite a lot has gone on in my life in the last 4 months. The puppies have all grown, and gone to new homes. They have left a footprint on my heart – they were jolly hard work but oh so lovely to have. We kept one from the litter. A stunning young lady. We named her Bess. And yes she is turning out to be just we hoped; a great combination of mum, Bella and dad, buddy. Bess is already taking note to sit and wait when nurse Evelyn is attending to me. She is intrigued in all the help that a grown up Labrador parent can be.
We had the honour of attending and celebrating Sophie’s first Holy Communion in May. What a wonderful day that was. Alexandra and Grace were ever so happy to get into their dresses and drive through to Glasgow. What a day to remember. So happy, full of laughter and love. Quite a memory.
Sophie trying to beat Stuart’s time completing the rubix cube.
Sophie with Alexandra and Grace at her Holy Communion Celebration.
I felt far from my best in the last few months. Seen my consultant, dietician, several hospital visits. My wonderful nurses come to the house and cater to my needs. I’ve lost weight which is a bit of a bummer. My gastrostomy tube snapped which was slightly annoying- lovely staff from the hospital came out straight away with a new part. Now that’s what I call service. There has been a fault with the batch – there has been a run on broken tubes 😂
On the 10th of each month I get the chance to meet up with net cancer patients. Through the charity The Ann Edgar Charitable Trust. We have a great time blethering away, sharing stories. 10th June my sister hazel drove me to haddington to meet up with the others for a coffee on a Saturday afternoon. July 10th Steve and I went in style on steves BMW motorcycle to the evening meeting. The meetings help me a great deal. They give an opportunity to talk, share experience and most important be YOU. Looking forward to the next one.