Big boys do cry

Being at home permanently since March 12th has certainly given me time to think.  There has been many a lonely hour to reminisce.  Its been lovely to look back and remember events that have gone by, places I’ve  have visited, people that have came into my life and made an impression; left their mark.

In my 54 years of life its been happy, eventful and surrounded by a great many beautiful caring characters.  From the moment I have been able to comprehend I was showered with love.  As I grew up I was always shown kindness,  the family philosophy was treat others as you would like treated yourself, I will never ask anyone to do something I wouldn’t do myself.  Yes these days as I am getting less able and I  will pay someone to clean, paint  or fix something  – I’m sure these tradesman appreciate the work.

Getting back to my time to think.  When I was sitting putting my feed on I was thinking about when part of my job included listening to people and their problems, how they were feeling.  I encouraged them to talk about their feelings.  Express exactly how they felt at that particular moment and how to deal with it.  I would gently persuade them to chat and through time just by talking they would soon realise what made them happy and what made them stressed and sad.  We would work on the positive aspects of their everyday living and help them get back to a happy place.   One thing that did happen to several people is that at some point during their journey was they would face an emotional encounter.  Regardless of their gender, age or size they would talk about whatever may be bothering them, or perhaps on the contrary what has made them very happy that day and then suddenly the voice would go quieter,  and that emotional encounter would take place; the real journey had begun and I would consider my work as continuing success…. Looking back at how a lot of us are feeling at the moment, frightened to show our emotions, a lot of people get told to be quiet, not talk about their feelings, not cry.  If they do cry many are met with Now come on, stop that crying, pull yourself  together.   Stacy Solomon on Loose Women was talking on ITV and said her mum used to vacuum when she was crying, to hide the fact that she was.  All very sad.  We need to be allowed to show our emotions.

I still remember one particular chap when I was working, he was your average build gent, and a father of three, he felt he was failing all round, his family, his work, his health, and most importantly himself.  Of course he wasn’t.  When he got to his emotional encounter he quietly sniffed away the tears and continued to talk, shortly afterwards he described blurry vision and tears threatened to spill from his eyes.  He wiped his eyes so much they were red and swollen. I handed him a handkerchief and said let the tears happen,  please don’t be embarrassed.   His lips trembled, an involuntary whimper escaped his lips as tears spilled over the sides of his eyes.  He looked over at me, his face shouting out help me and please listen.  His body wracked with an onslaught of sobs and tears.  The tears raced down his cheeks.  He cried for a few minutes.  When we discussed events he explained how relieved he felt and thanked me for getting him there.  We still had a way to go, however, the big lesson learnt was not to these suppress emotions;  and deal with them appropriately – the basic emotions are happiness, fear, surprise, sadness, anger and disgust.  The message from this experience I took was most definitely people gain from expressing their emotions, getting upset, talking about their problems; a problem shared.  Big boys do cry.

 

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I most certainly do know being home on my own and having this time to think I also have to to shed a tear and I have probably cried more in the last few weeks than I have done so for quite some time.  Although I do have to say my life is made so much better by those folks that message me and ask how I am, who give me a phone and have a natter.  Please drop an email or a text or give a quick call to your pal or your mum, brother or sister, etc.  I have noticed there are some folk that I only get texts if I send them one first, would I get one asking how I am if I didn’t send them one?  Perhaps I would, maybe I wouldn’t!!! But one thing I do know there are some folks in my address book that we send messages to each other regardless, sometimes I’m first, sometimes their first.  But one thing I do know we deeply care about each other and look out for one another.  You guys know who you are; I love you.

Sunday Afternoon

Our usual Sunday Afternoon consists of a ride on our Harley Davidson.  Meeting up with chums from the The Dunedin Chapter Scotland and visiting my Dad.

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This particular Sunday we are still in lockdown and restrictions still apply.  We are very that we are surrounded in the most beautiful countryside, our garden is larger than most.  And we can certainly exercise and get fresh air without bumping into anyone if we want.

For some time there has been an area near the front of the house that we would love to put some hard standing to cover the dirty area that gets mushy when folk park on it, despite all the chipped area around the house.  Steve brings round to work with some beautiful natural stone.  And begins to lay it.  Our Harley Davidson Fat Boy sits in front of the house looking lonely.  Our labs, Buddy and Bella stand together at the front of the door, waiting eagerly until I finally say they can come and join me while I put plants in the pots at the front of the house.

 

 

 

They are so happy once they join us out the front. Watching Steve cut the stone and lay it.  And me put some petunias, lobelia, pansies and a few other plants in pots.
The one thing that certainly hasn’t changed about the Sunday Afternoon is we spend time together.  Have a lovely day no matter what we do.  Just make the best of it.  Life is for living.  Live, laugh and love everyday.

And always make sure we make time for ourselves.  My time is writing.  Which I love love love.

Have a great day folks.

 

Keeping Me Company

As we know the  restrictions  on the UK during Covid-19  

are continuing over the Easter weekend and well into the rest of April.  Although I’m missing my visitors coming to the house I have been enjoying the FaceTime calls and many texts and emails I’ve been getting.  The messages really keep me going and cheer me up.

So who do I see?  Who was keeping me company.  My only visitors are my nurses; they come to check on me, service my gastrostomy tube, change my dressings and administer my octreotide treatment every 14 days.   I live with my hubby,  and our two labradors, Buddy and Bella.  Buddy is a great help he knows when my sugar level is low, or  when my heart rate is playing up.  Buddy and Bella are two beautiful labradors Buddy is a stunning fox red and Bella is a lovely little yellow lady.  They are husband and wife; We have bred them together twice and had 21 babies.  They are wonderful company, give the best cuddles.  Im glad the dogs do give the best hugs at the moment,  its a really weird time.  Even my own home surroundings that are so familiar can feel very alien and so damn well lonely a lot of the time.  I’m so pleased I’ve got my hubby and dogs at home and my regular face timers, phone callers and folks that text and email otherwise I would be feeling like if I didn’t die of Coronavirus I may die of a broken heart or loneliness.

 

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One of our nurse’s has taken a shine to our labs and gave them an Easter present.  They were chuffed.

That reminds me I better get something for my loyal lab’s Easter and order their food on https://rcm-eu.amazon-adsystem.com/e/cm?o=2&p=13&l=ur1&category=amazon_business&banner=1F498HGV07F7YKE5JQG2&f=ifr&linkID=921d9025bcbdbe51885c15afeab9a0a8&t=smileeachande-21&tracking_id=smileeachande-21” target=”_blank” rel=”noopener”>Amazon

 

The one thing the dogs and I love is listening to music in the kitchen.  We just say Alexa play “a certain playlist” from Amazon Music . Bella is a dog that likes to sing, Buddy is a dog that likes to dance.  They really are amusing and great company.

Right now there is a special offer for three months on the subscription.  Click on the link below to see.

https://rcm-eu.amazon-adsystem.com/e/cm?o=2&p=48&l=ur1&category=amazon_music_bounty&banner=1S7QPRHBCK6W9HRPHV82&f=ifr&linkID=1dffa2c820211d5fd70cd355e422e3f0&t=smileeachande-21&tracking_id=smileeachande-21” target=”_blank” rel=”noopener”>amazon music

 

We’re all Jock Tamson’s Bairns

As the time of the restrictions of the coronavirus goes on not only here in the UK but in a great many countries all over the world.  We have all had to get used to for the time being a different way of life.  Here in the UK we are still in lockdown.  Shops, restaurants, pubs close.   Work places cannot function as they once did.  Schools, colleges and universities have closed their doors to students and staff.  Many personal services can no longer take place; such as hair cuts and styling, nail manicuring, tanning.

 

As someone with carcinoid syndrome   things changed for me quite some time ago and I  had to learn to deal with many issues.  I have had to make many adjustments.  My skin has changed, I have to deal with horrendous flushes, etc.  Whilst I still love to wear make up, dye my hair, etc I have to be careful for reactions.  Looking back as a youngster I can remember pinching my mothers food colouring to dye my hair when I had ran out of money to buy the real McCoy and making sure the earrings matched the colour of the nail polish,  that co-ordinated the hand bag and shoes.  Well I was more of a Dr Martens  student, although I did like to wear the decorative ones, give a bit of colour to my life.

 

The one thing I have never been into is wearing any ‘add ons’ – getting my nails manicured and polished and painted a pretty colour for a special occasion yes.  Acrylics on me? No – just never been the done thing.  Hair extensions are something that have came a long way in the last few years.  And to be honest they look so good and natural you would never know where the natural hair ends and the ‘fake’ hair starts.  And as for any other body enhancements, young women placing an implant in their bra, such as a  chicken fillet insert to make them look on the larger side and give them that extra lift.  In the seat of their pants too bum boosters.  for that additional filling on the rear end.  I’m blessed with olive skin and don’t feel the need for fake tan

 

As a woman who brought up two lads I didn’t have make up,  nail polish, make up, hair extensions, bra, etc requests in our household.  We did have lots of aftershave, mousse and wax for hair styling, and hair dye.

 

In the evening hubby and I find ourselves sitting blethering about our day just the same as we normally we do.    On one of our evening chats we had a discussion about how much time has been spent on screens and the pros and cons of this.  We have been really grateful of the smartphones we both own, the fact that we can FaceTime our friends and family.  If I am going to be in the house for 12 weeks with the garden for light exercise and the only physical people I see are Steve and my nurses I cannot thank enough the progress of technology that has allowed us to move forward and video talk on a call.  On Sunday when my hubby was cleaning our Harley Davidson and I was doing my favourite job of saddle soaping the leather panniers we had a FaceTime call and the 4 year old granddaughter, Alexandra that is mad keen on motorcycles, virtually started the Harley Davidson Fat boy.  She got to hear the roar of the pipes.  And to see the big smile on her face made my day.  As we discussed screen time we went on to discuss social media and what we had seen on it over the last day or so.  My husband had been perplexed and annoyed with the folk that were generally yapping about nothing.  I said to him its simply boredom with people, they have nothing better to write or they are hiding behind their status and making out everything is FINE.

 

What really got us was the folks worrying about breaking their nails and not being able to get to the nail bar…… the hair extensions falling out…….roots coming in and the fear that everyone will see their hair colour (well I hate to tell you, you have just told us, if you hid in your house, and didn’t put a status up no-one would know)………    We have started to see status’s on facebook and people tweeting about their appearance or rather what they believe the lack of it.  They are worrying about what they look like even when there is people fighting for their lives in intensive care.  One of the nicest stories I heard this week was a young family talking, Mum in her late forties was doing the talking, got to admit she looked like she had just got out of bed and it was lunchtime, she was wearing a pair of jeans and a sweater, no make up and no fancy hair do, the kiddies were still in their onesies; Mum was telling the tale of how nice it was to work from home, not feel pressurised to get dressed up and be able to wear the same set of clothes the next day.  Oh and have a day off from make up.

 

I remember a time when I was a bairn and played free, skipped to my lou and sang songs, didn’t bother if there was make up on, what size of breasts or bum someone had.  Yes, its great to take pride in our appearance, however we have to be careful not to become self obsessed.  What we have to remember is  we are all human beings with similar skin and hair.  As the saying goes We’re all Jock Tamson’s Bairns

 

 

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Photo by Pixabay on Pexels.com

 

The Arrival of The Coronavirus

We are approaching the end of March 2020 and this weekend we should be away with friends from the The Dunedin Chapter  ,

I so enjoy being part of this group.  It is our biker family.  From the second we joined we felt part of something.  A warm welcome always awaits us, a support network is available in variety of ways.  Help with the physical Harley Davidson motorcycles; buying, servicing advice, etc.  Things to do; runs, rallies, etc.  Friendship; many friendly faces, great companions, lots of advice, etc.  Socialisation; we all get together and have meetings, weekends together, nights out, lunch meetings, breakfast clubs, chippy runs, etc.  All in all I love belonging to The Chapter.  We are now on to our second Harley Davidson, I have been on motorcycles since I was under 5 years old,  on the back of my brother when my feet couldn’t reach the footpegs.  I have been a pillion to my hubby since I was 17 years of age and I’m now nearly 54.   We have had motorbikes the majority of our married life.  Fifteen months ago we thought we would dip our toes in the water and visit West Coast Harley Davidson for a look at the bikes and what they had to offer.  before we knew it we had  decided it was time to get ourselves a Harley, it was a little Street Rod.  We thought best start small  and not break the bank.  Just to see how we would like the ‘Harley way of life’ and boy do we love it.    While we loved the wee bike, it was just that, too small and So a few months later we traded it in for a beautiful fatboy low.  We got this one at Edinburgh Harley Davidson

This weekend a trip to Aberdeen had been organised by our Harley Davidson enthusiastic friends.  We were all getting together to stay a night in a hotel and have a night out and raise money for the air ambulance.   The plans were, to take a drive up together on the Harley Davidsons if the weather was warm enough and I was feeling up to it, if not take the four wheels and book in to the The Craighaar Hotel in Aberdeen

 

I was so looking forward to going to Aberdeen. Due to my health, the neuroendocrine cancer, the carcinoid syndrome, the treatment I need and the fact that I get fatigued very easily I don’t go out that often.  I find life difficult, some days a general task feels like I am walking around with a 25kg bag of sand on my back.  Needless to say I am very familiar with my own surroundings and am used to being in the 4 walls I live in.  I can be home for three weeks without crossing the door.  My district nurses come to ‘service’ my peg.  Change my dressings, administer my octreotide injection and deal with any other at home health condition I may require. They are wonderful and I couldn’t do without them.

Although I am used to spending time at home on my own, with the company of my two Labrador’s within my four walls I do spend quality time writing, which I enjoy a great deal and I have embarked on a course which I love the challenge.

Suddenly the world has been hit by an eerie storm, one which we have never seen the like before. The human race has been struck down with Coronavirus.   The arrival of the Coronavirus is here.  For a great deal of folk it has been fairly harmless, however for many it has proven deadly.   To find out a little about coronavirus visit – https://www.nhs.uk/conditions/coronavirus-covid-19/

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Countries such as Spain and Italy are ahead of the UK and have many deaths and have put in strict measures. Here in the UK, we have had to take on a different way of life. Schools have been closed, where possible people are working from home, people are instructed to stay home unless exercising, which is only once per day. Social distancing has been put in place, with everyone to keep 2 metres apart. All these measures have been put in place to try and Stop the spread of Coronavirus. This virus is escalating and getting out of hand, we need to self isolate and stop it. Many people have it, are in hospital, some very poorly and on Ventilators. It’s all such a worry. People are wearing gloves, masks and using hand gel in abundance. Hospitals are running short of ventilators. There are more people needing the machine that the country has; something has to be done.

A team put their heads together – staff from formula 1 Mercedes , staff from University College London hospital (UCLH), and a team from university college London to adapt and improve existing CPAP in a process known as reverse engineering.   Basically they have helped create a breathing aid to help keep coronavirus patients out of intensive care.  You can find out more at the following – Mercedes F1 team helps create breathing aid

Life has become very strange for many people, our country is in lockdown, bars, cinemas, restaurants and many shops are closed.  Public gatherings are banned.  Plus many more other measures are put in place.  Some people feel sorry for themselves and are sitting at home whining and moaning, complaining they are bored and wishing they could get out of the house.  Whilst its understandable that they may be bored, sitting at home when they are used to working several hours per day and keeping busy.  Or going out and having fun, playing sports or going to the cinema, etc.  However, these restrictions have been brought in for our own good and it won’t be forever.  We should take time at home, learn a new skill, cook, draw, do a bit of gardening, enjoy reading a book, do some knitting or sewing, play old fashioned board games.  And most importantly our thoughts and prayers should go out to people that are in ICU beds in hospital, on ventilators, fighting for their lives.  This virus not only attacks the vulnerable like me, or the elderly like my 87 year old father, it sadly took the life of a young lady of only 21 years of age with no known underlying health conditions, it also took the life of a 54 year old doctor, the youngest person to die has been 18 years of age.

I did read a couple of pieces of good news the supermarket Asda is donating £5 million to   fareshare and  The Trussell Trust to help the country’s most vulnerable people through COVID019  Asda will prioritise access to stores for NHS staff as of next week every Monday, Wednesday and Friday 8am – 9am in larger stores.   Well done Asda

I know the next few weeks are going to be very trying for us all.  The NHS are doing a fantastic job in looking after the patients in the hospitals, at home, etc.  Carers are looking after the vulnerable the best they can.  Supermarket staff are stretched and pushed to the limits at times, the shelves look like its christmas, with the exception its not happy, clappy cheerful customers, its frightened folks walking into the unknown.

For me tomorrow Ive got my district nurses coming to do my dressings, service my tube and give me my two weekly octreotide.  Tomorrow the nurses will be gowned up, masks on.  Whatever will my labradors Buddy and Bella say, they won’t be getting their treats for mummy being a good girl and getting a very large needle jagged into her.

Warm Welcome in Ellon

As I woke on a bitterly cold February Saturday morning to the sound of my granddaughter’s singing voice I remembered I had something to look forward today.  We are making the trip over the Queensferry Crossing, over to Fife,  driving up the M90.

For me this is the best week for travelling, Evelyn had been in on Tuesday not only to service my gastrostomy tube but to administer my octreotide.  This is a malignant suppressant injection I get every 14 days.  It is licensed for every 28 days at maximum dose for people like me with added complications of carcinoid syndrome.   My ‘numbers’ are on the high side with my 5hiaa, my symptoms are awful and so we have it – maximum dose every 14 days.    The nasty injection is worth it.  Fewer visits to the bathroom (reduction from 12 times bowel movements per day to 4) and looking less like a character thats on tour with Ribena Juice Company.

The Our destination is a few miles north of the granite city, Aberdeen.  I have visited Aberdeen on numerous occasions.  My Grandmother is from this wonderful area of the world and my great aunt after a great deal of travelling finally settled and ended her days in Aberdeen and I have such  fond memories of visiting with my Mother as a child, playing in Duthie Park, building sandcastles at the beach. There is so much to do.   My most favourite thing alrways a visit to The cathedral church of St Machar

We were travelling up to stay over with relatives, Steve and I are not always the easiest house guests, we both blether at a million miles per hour, talk over one another, and finish each others sentences.  We bring an awful lot of luggage, I alone need a suitcase and a holdall for one night’s overnight stay, I have my pump, a lot of medication, syringes etc. I know I have my blog, however we are private folks and there are things we like to keep to ourselves.  We very rarely stay with family or friends, we usually book into a hotel however we both felt we would feel comfortable staying with Pauline and Les for our first trip to Arthrath.  Located 7 miles north of Ellon.

 

 

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Pauline sent me a photo of the sign at the end of their road, heading to their house.  The road is rough.  To me if it was covered in snow it would be more suited to skis than a car,  the large ditches in the road resemble the moguls on the ski slopes I have skied, it distinctly reminds me of the white lady I skied on the cairngorms, everywhere you turned there was another mogul to go down.  Ah, such happy memories.  As we drove down the road to the house the car bounced up and down, in and out of the ditches.  I had the feeling I wanted to lift my legs, I could hear my ski race trainer from my youthful days, the wonderful Hanz Kuval, say bend, stick, turn. As the now not so shiny BMW’s wheels dropped into another deep hole.   We parked round the back of the house as recommended by our hosts.  And so it was so much easier to get in the house, sheltered from the wind, a straight walk from the car across the decking into the porch.

 

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Where a very warm welcome awaited us.  From the minute we walked in the door nothing was too much trouble.  Thirty seconds in and the kettle was on.   The most beautiful  house with comfortable furnishings, welcoming signs of grandchildren; some toys, photographs, canvases, etc that made me feel very much at home, however, gave me a pang in my insides and a yearning to see my beautiful granddaughter.  There is an array of animals located in various parts of the house – they are amusing and you feel you want to have a conversation with them.   And I most certainly did.  Although I’m not sharing any secrets.  As I said our hosts were fabulous, they couldn’t do enough for us, coffee, tea, beer and wine on tap.  Nibbles to munch on whilst lounging on the sofa and leisurely blethering.  A lovely enjoyable afternoon to sit and have a natter, let me get another afternoon feed on pump and a bolus before getting ready to go out for the evening.  Pauline is the constant nurse and continually picking up after me, a welcome help and yes you feel safe and secure in her company.

 

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I go through to our bedroom for the night to get ready, the room is huge, I more than appreciate the space, plenty of room for all my gear.  The bed is ever so comfortable with luxurious bedding and the most comfortable plump feather pillows.    I was most appreciative of the large ensuite bathroom.  It was bigger than most peoples family bathrooms.  there was a stand alone bath, toilet, sink and bidet.  With plenty of room to move around which is very important to me, especially first thing in the morning when the bones are not quite moving as they should be.  The room is so inviting I could climb onto the bed and snuggle in and relax.  However, I know I will enjoy the company of my hosts for the evening and get myself ready.

Les did the honours and drove us to Ellon .  We were booked into The New Inn Hotel, Ellon for a meal.  The hotel was bustling and nearly every table taken.  We arrived half an hour earlier than our reservation.  The staff greeted us with a warm smile and were very accommodating and set us up a table within a couple of minutes of us arriving.  We ordered drinks.  Looked at the menu.  The delightful waiting staff were very efficient and very soon my three companions were enjoying their evening meal, Steve and Les began with starters which they enjoyed immensely and then fairly quickly the main meal came,  our hosts both ate Seabass, my hubby ordered the house burger and I picked at the scampi.  We had this delightful waiter that looked latin, he was tall dark and handsome.  Most of the evening Pauline and I teased him, as we ordered our desserts we asked where he came from since we thought he had an unusual accent.  He told us he was from Peterhead,  Oh we thought you were from somewhere like Italy we said in disappointed voices, you are a “Peterhedien”  oh what fun we had.  The desserts arrived,  and yes, naughty me  had some,  I had a little eton mess.  And yes it was worth having.  Steve had the cheese cake.  A nice touch on top of the cheesecake is scottish tablet.   We all enjoyed the food, the service was excellent.  Would I go again.  Certainly would.

 

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On leaving the hotel we went a short walk across the car park to a friendly pub,  The Tolbooth Pub, Ellon.  As I walked in I soaked in the atmosphere; it was warm and friendly.  It was busy with a variety of ages of folks.  Sitting up at the bar stools were a group of ‘middle aged ‘ folks.  At various tables were various people, as were in the lovely booths.  We made our way to a table beside one of Les and Pauline’s friends.   In one of the booths were five young lads, I’d say in their early twenties.  They looked happy and were sitting blethering and laughing, next thing they started singing The northern lights of Aberdeen.  I felt my heart pang, it was a song sang to me by my Mother, one we would sing together.  They sang, when they got to the last line Pauline and I sang along “To my home in Aberdeen” I could feel the tears, however happy tears.    I turned and looked over to the lads at the booth the young chap with the curly hair lifted his whisky glass in my direction, gave a wink and a cheeky smile – made my night.

On returning to the house Pauline and Les looked after us, we chatted into the small hours of the morning and before we knew it, 3am hit the clock.

I woke on Sunday to my FaceTime call with my 4 year old granddaughter, Alexandra, we had a wonderful discussion.  Her first words  of the conversation were you are coming home today and final words were I love you…. lots of stories in between.

At 10.30am we went to visit Steve’s auntie Margaret in Aberdeen before going out for lunch at  The Cove Bay Hotel . There were 11 of us for lunch.  And what a great lunch it was.  It was so lovely to spend some time with Steve’s cousins and have time for a catch up and a blether.  We had a table by the window with a beautiful view of the sea.  Auntie Margaret and I were right by the radiator, we were toastie.

After lunch Steve and I made our way back to East Lothian.  We had a quiet drive home.  It didn’t too long at all.   It was lovely to see our cottage.  Spent a relaxing evening with our dogs at our feet.

A massive thank you to Pauline and Les for introducing us to Arthrath.  And making us feel ever so welcome and not like visitors at all.

Big thank you for The Warm Welcome in Ellon

 

Net Cancer Day

Yesterday was November 10th. On the Cancer Calendar this is World Net Cancer Day. In Edinburgh the Scottish Charity, The Ann Edgar Charitable Trust hosted a forum at The Novahotel. And what a great informative event it was.

After being offered a beautiful buffet lunch, chance to meet other patients and folk interested in nets David Drummond, chairman and partner of the late Ann Edgar opened the show with a warm welcome. We were then given presentations from great speakers:

NET specialists from throughout the UK gave up their Sunday to give presentations. Offered their expertise and answered questions to patients, families, friends and people generally interested in NETS.

 

 

 

Margaret Boe – The Ann Edgar Charitable Trust (TAECT) . Trustee and wife of Net Cancer Patient, Norman Boe. Margaret is retiring and handing over the baton to Priscilla Fernandez.

 

Margaret Boe

Katie Gibson – NET CNS at Western General Hospital, Edinburgh, Talking about patient and carer support in Scotland

Lucy Dornan – NET CNS at Beatson Oncology, Glasgow. Talking about PRRT programme in Scotland.

Lucy Dornan from Beatson talks PRRT

 

Nikki Jervis – NET Patient Foundation. Talking about patient wellbeing.

 

Nikki Jervis

 

Professor Mark Strachan – Endocrinologist, Net Specialist, Western General Hospital, Edinburgh. Talking about whats new in NETs.

 

Professor Mark Strachan

Dr Lucy Wall – Clinical Oncologist, Western General Hospital, Edinburgh. Vitamin Research Project. Results to be presented in UKINETs.

Mark Strachan and Lucy Wall set up the first NET clinic in Edinburgh 14 years ago. Fourteen years since the first Net patient walked through the doors, with a great deal of progression since then. All for the good of course.

On the way to the event I had a sneaky look at my smart phone. An Apple I Phone – I have stayed loyal to Apple, the great Steve Jobs lost his battle with NET Cancer in October 2011. As I looked at my twitter feed I saw my friend Kath had promoted awareness of the disease in her local paper. Well done girl. I can relate to the piece so well, as I am sure many people with a NET diagnosis can . If you would like to read Kath’s feature please click on the link

https://www.stokesentinel.co.uk/news/stoke-on-trent-news/i-feel-like-im-sitting-3517787?fbclid=IwAR2HyssDuZs9hekMPjfDhlcWDtzBIlf5KBA9TSTgdt3IfXXD40-RunU9K3Q

 

On entering the hotel I turned my phone off, no interruptions. However, at the coffee break I turned on my phone. A couple of messages. From each of my sons. Both checking up on their old folks and letting us know they are doing ok. One of the texts came with a photo of Granddaughter, Alexandra – she found her Daddy’s scalextric at our house and was loving playing with it. Knowing our boys were thinking of us warmed my heart.

 

Our Alexandra finds Daddy’s Scalextric

 

As we were packing up to leave we got in the car and I turned my phone back on. Stuart and Alexandra called to say Alexandra was going back home and we would see here Thursday. Her Wee voice echoed in our car can you hear me Granny? When I let know I could she blethered away. She said I helped my Daddy put your lights up – they are very bright. Then she said I love you Granny and I love you papa see you after nursery xxxx