Harley Davidson run in The Scottish Borders

After a day of swithering whether I should accompany my hubby and some of our good friends from https:www.dunedinhog.com on a mates run. I hadn’t had the best of days, had to phone my medic team and get one of them to come in on an emergency. After only two weeks my gastrostomy tube had to get changed. Believe me it wasn’t a pleasant experience. I rested all afternoon then decided the company of good pals and some fresh air would do me the world of good. So at 5pm on the Friday evening I got myself into my bike gear all ready for a Harley Davidson run in The Scottish Borders.

My hubby Steve spoke to our chum Scott and put it to him “show us your ride” Steve and Scott messaged each other back and forth. Scott and his wife Shirley lead a scenic route. We met up with them in Galashiels. The drive from our place in Boggs Holdings, Pencaitland to Galashiels was a reminiscent one. We took the A6093 to the junction of the A68 and turned left, took the first right and headed towards Gorebridge, passed the entrance of Vogrie Country Park, my mind took me back to many walks I went on with my hubby, children and dogs, such happy times we had, I now hear lovely stories from my grandchildren when they have visited and played at the park and walked the dog. We made our way along the narrow twisty road towards Borthwick, passed Borthwick Castle, where Mary Queen of Scots sought sanctuary in June 1567 when she learned Scottish nobles planned to capture her. You can find out more about Borthwick Castle at https://www.borthwickcastle.com I was happy to drive pass our sons old primary school, Borthwick Primary which is now a private residence. We drove up the twisty steep incline to North Middleton.

From North Middleton we took the A7 and headed south. Our destination was to meet up with our group in Galashiels. The drive down was wonderful. We enjoyed a somewhat familiar drive, one we did regularly several years ago, what seems like in another lifetime. The scenery was beautiful, typical of Scottish countryside, as I looked ahead clouds rolling in the blue sky, many shades of green on the hillside; home to the happy skipping sheep, bleeting as we drove passed them. The river looked inviting as we drove by, I could have asked Steve to stop at the side of the road and took a paddle. As we drove down the A7 we rode through Falahill, Fountainhall, Torquhan, Stow, Torsconce, Buckholm and finally arriving at Galashiels.

For the hungry horace’s we met up in Macdonalds car park. For those who wanted could join an organised social distance queue for food or got to the loo. Whilst the others ate, went to the loo and blethered. I sat on the ground in the car park and caught my breath. I don’t mind admitting I was feeling a tad wobbly when I reached my milestone, Galashiels and I could have done with going home. The ride from ours to Gala was more than enough for my body on this particular day. However, my want and desire to finish the route, be out with our friends and enjoy the time on the fatboy outweighed how I was feeling. Despite feeling my heart beating so fast that I thought it was going to jump out of my shirt. And the worry that my blood sugar wouldn’t keep up all the way round despite having my gastrostomy tube running. My body ached. Feed checked, all sorted and feeling better. After the rest, I took photos of the others and their bikes. When we were ready we took the A7 and headed towards Hawick.



Scott took the lead with wife Shirley in her Harley Davidson behind him, both Borders folk made it ideal for them to choose the route. I was looking forward to this run. Will it live up to my expectations? I hope so…….

We drove 6 miles from Hawick, Scott took us to the picturesque village of Bonchester Bridge, lying on the Rule Water. Leaving the delightful village the route did not disappoint and the scenery just kept on giving as we headed over towards the A68 and rode to the border view point.




The Scotland England Border on the A68 is an excellent opportunity to stop, take a break and a wee photo. We all had a great time; even had time for The Vickie Green Challenge.

Vicky Green Challenge


We stopped for a while at The Border View Point, giving us a good rest point as well as the opportunity to take photographs. Then had an enjoyable drive down to Jedburgh. Memories came flashing into my mind as we drove through. Passing the rugby ground, seeing the large posts, wonderful recollection of my son Stuart playing second row for Haddington. The sheer delight of Haddington under 16’s winning the cup. What a day that was. Such a great feeling standing at the sidelines cheering the team on, screaming at the top of your voice. Regardless of the weather, rain, hail or shine. Continuing our journey we made our way to St Boswells, turned right, opposite The Buccleuch Arms. Lead by Scott we climbed up a beautiful steep road with some unpredictable twists and turns. Drove a route with amazing trees, lush grass and beautiful plantation. We arrived at Scots View; one of the favourite views of not only Sir Walter Scott, but of my parents. Looking over the valley of the river tweed I could clearly see why. It is not only a beautiful view, it is calming and relaxing. I felt quite at one with myself soaking in the atmosphere. My parents took my sons Tony & Stuart and their cousins Lindsay & Robert here, as well as many other places. However, Scots View is particularly memorable not only for the view, but it was the day my son Tony fainted.

Scots View



After spending time at Scots View we took the back road and headed to Lauder. Thereafter, our wonderful hosts, Scott and Shirley headed back to their home in Ancrum. The Edinburgh based folks headed towards auld reekie and Steve and I made our way to Pencaitland. We went straight down the A68 turned right signposted Haddington on the A6093, through Pencaitland till we reached our home in Boggs Holdings. Buddy and Bella were pleased to see us, as I was to see them. As much as I enjoyed the ride it was good to get my feet up. I had a beautiful evening with lovely people. It’s so nice to be tired for a reason. It’s good to meet up with others and see places I haven’t seen in a while, especially ones that provoke memories. Looking forward to the next run.


Scots View

Felt like a teenager

Last Thursday after a horrid infection to blow the cobwebs away I went out with my Hubby and mates from The Dunedin Chapter Two Palaces and a Castle. You can find out about The Dunedin Chapter at Dunedin When we left Linlithgow we drove home a different route and lets say it didn’t go as smoothly as getting there; not that I minded mind you, looking back I Felt like a teenager.

Steve & I on The Fatboy

As we left Linlithgow we headed along the B9080 and made our way for Winchburgh, my the little place is growing. New houses popping up. As we were approaching Winchburgh I snuggled into Steve and rubbed his leg we drove passed beautiful newly built houses on a very dusty road. Steve slows down, realises he had gone too far and should have veered to the right at the new houses. All ten bikes turn round and head in the right direction………we make our way for Kirkliston. Lovely smooth drive till we get to the lights. Look up, familiar yellow sign with a black square, diversion, the road on the right was closed and we had to turn left. Making our journey longer. We headed down toward Queensferry. Then followed on till we got down to the A90. Where on earth did all the traffic come from?

The traffic queuing to go to Edinburgh was heavy. Steve took the lead with the others behind him. I stretched my head to the side in front of us was a trail of cars, vans, and lorries for as far as the eye could see. As we sat breathing in the fumes, listening to music from the cars, watching frustrated faces on the drivers of the four wheels I saw Stuart glide past us like a beautiful bird carefully weaving through the traffic. Next Colin manoeuvres and drives down the middle of the two rows of stationary vehicles and then in formation all us Harleys follow on. As Steve and I weave through the traffic I have amazing memories of being 17 and on the back of a sports bike, feeling the need to draw my knees in at every opportunity. I turned my head to the side and saw a young chap in a fiat 500 look at us, he smiled and waved. I lifted my hand and waved back, he had that look of envy. Sitting on the back of a bike, driving up the middle of two lanes of congested traffic; wow what a feeling. For some scary, for me utter bliss, I love it. I live in the country, our road is a single track road, not a cat eye in sight. No street lights, no orange glow of the city. And thats how we like to live. But the drama of feeling that you need to pull your knees in to pass a car, feel the rumble of the big trucks as you fly pass them. Made the traffic jam worth every moment.

Sitting in the traffic most certainly this day was better to be on 2 wheels that in 4.

If you want to give riding a motorcycle a go. Why not visit these pages. And then pop down to the shops and have a look and a chat. Ive been on bikes since I was 3. Honestly they are great fun and you meet wonderful folk and see fabulous places.

https://www.twowheels.co.uk/pages/learn-to-ride/motorcycle-training.htm

https://www.saltiremotorcycles.com/rider-training-edinburgh/

If you fancy a Harley Davidson. Look no further than your Scottish dealerships.

https://www.edinburghharley-davidson.co.uk

https://www.westcoastharley.com

A Glimpse of the Harley Davidsons that were on the trip

Turn that frown upside down

I would like to introduce a young lady who lives in Midlothian, Scotland. At present she works in an office however dreams of one day working full time in the writing world. Whilst chatting to Beth Merry I can feel her frustration and want to break out and get those fingers tapping the keys and tell the world all she has to say. Although Beth writes her own blog https://bethanybloggswriter.wordpress.com I suggested she write a guest blog for my site. Since my site is smile each and every day. I gave her the topic “smile everyday”. This was the heartfelt article I got back from Beth. Its about one of the hardest times in her life when she found it difficult to smile, whilst she was surrounded by sunshine, all that energy and heat failed to warm her heart and make her happy. Despite the rays from the big yellow sun and the beautiful blue sky Beth felt cold and alone and at many times incapable of smiling and having that warm butterfly feeling of comfort inside you when you know you are safe, loved and belong. Would she ever feel like this again, and be able to turn that frown upside down. I hope you enjoy it.

Why 2020 is Better than 2016 to Me

Before 2020, there was another year that as a society collectively decided was – to put frankly – absolutely awful. 2016 saw many beloved celebrity deaths, worldwide panic over the election in America, terror attacks seemingly around every corner, and plenty of other horrors that left the world pausing to catch its breath on the 31 December that year and crossing every finger and toe that 2017 would be kinder.

For me, 2016 was particularly awful because both my mum and my grandad sadly passed away, and I had to pull on my grown-up pants at 19 years old and pretend I was strong. It was one of the hardest years of my life; and now with 2020 being deemed an even worse year due to the pandemic, I’ve had time to do some reflecting on how much has changed.

Moana Beach, Adelaide, Australia

In 2016, I was living in Australia. My family had emigrated when I was 10, and while the first couple of years I had enjoyed, the shine eventually wore off and I found myself desperate to make my way back to the UK, back to my home. I felt increasingly out of place at all times, and desperate to tell people that I didn’t belong – the fact that I had absorbed the accent almost immediately did little to persuade folk. As the next of kin for my mum who passed away in June, I was left in charge of putting her affairs in order for myself and my younger sister which meant a lot of phone calls I didn’t know how to make and, more importantly, arranging a funeral. I grew up a lot that year – and fast. I was still studying, still working two jobs and getting over a lot of heartbreak. It felt like things would never improve.

Seafood Rise, Adelaide, Australia

Fast forward to 2020. As I write this, I’m sat in my house in the Scottish countryside that my partner and I bought together nearly 9 months ago. He’s putting together some units to complete the massive desk he’s constructed for our home office, and I’ve got a stew bubbling away on the stove. I’ve had an uneventful day at work – Sat at my dining room table lockdown style of course – stretching my writing muscles now. Saturday was my birthday, and I had a quiet barbecue in our newly landscaped back garden with some family, and on Sunday my partner and I ventured out to Gore Glen to finally see the beautiful waterfall and connect with nature. I can breathe fairly easy these days and my worries are far less significant than those of 2016

Gore Glen, Midlothian, Scotland

I never could have predicted that in 4 years time I’d be in the space to feel this content. In a time where my world was crumbling around me, I pushed through to venture by myself to the other side of the world where the love of my life and I have made a life together for ourselves. Coronavirus be damned – the opportunity to look back at the last 4 years and see how far I’ve come make all the lockdown restrictions worth it.

These days, I smile everyday because while there are still a few things beyond my reach. I’m a damn sight further ahead than where I was in 2016.and there’s so much to be grateful for! I’m home in the UK where I belong, I wake up everyday to my amazing partner and the views over the Pentland, and I have room to grow at my own pace. What’s not to love?

Me, happy, home

It started with a puppy

Most of my regular readers with be familiar with Buddy and Bella my labradors. Buddy is my assistance dog, knows when I’m especially not too great, when the old sugar levels have taken a dip, he alerts me to take the appropriate action. He knows when the old ticker is playing up, the irregularity is a bit of a pain, sometimes the palpations are bangning through and I know that my heart rate is racing, however, when the blood pressure has dropped dangerously low, Buddy knows before anyone. Bella is his wife. And a great couple they are. My life is never been dull with my amazing beautiful fox red boy labrador Buddy and delightful loyal golden girl Bella.

The day I decided to breed them did not come lightly. Both my babies have great pedigrees. Exellent temperments and I had the confidence that they would produce fantastic puppies. However, there is always the worry – will my bitch be ok? how will the puppies be? The hard work it involves. I didnt want just to have the puppies and leave them in a room. I wanted them to be socialised, toilet trained, etc. Which would most definitely be a lot of hard work. Looking after my girl through pregnancy, sitting up with her during labour and helping look after the pups till good homes were found.

Soon Bella was pregnant, quickly she was a little barrel. We made her a breading box, gave her a room all to herself, so that when the pups were born, she would have peace and quiet. Time passed quickly and the pups were born. Dad was on hand, sat all the way through the labour. On the first of March 2015, 8 beautiful puppies were born.

This is the 8 Puppies

Bella & pups 1st March 2015

Eight healthy puppies looking for new homes. Ive got to admit I was apprehensive letting the puppies go. Leave us and stay with what to them would start of as strangers. As well as the folks phoning me asking questions, I asked them questions too. Good homes were imperitive. All prospective new owners came to view the pups, made a decision, had the opportunity to see them twice again before finally getting the pup at 8 weeks. One young lady that telephoned was called Sally. She already owned a labrador, a horse and lived with her Mum. Both of them worked, but it appeared that their work hours would suit perfectly.

First visit they were fair taken with the pups. They chose the lightest coloured pup, and told us his name would be Harley. Little did we know our friendship would grow into one of the best, all I can say is It started with a puppy

Harley & siblings having breakfast

This is Harley

Harley is three weeks old here

The weeks flew in that we had the puppies. Buddy and Bella’s romance grew. And the puppies soon went from mums breast to porridge to puppy feed. I socialised them a great deal. Let them run around the house. Our hall is very long they ran along it daily when they were able. They played with toys, got used to the noise of the vaccuum, washing machine, etc. Let them get used of children and people.

Bella and Buddy having a cuddle

Over the period of a week the puppies went to their new homes. When Harley went to his new home, his went to live with Sally and Marie. Sally worked at Edinburgh airport, two minutes from her home, The hours worked in great with her mums and Harley soon settled quickly with the resident labrador Cooper.

I am very fortunate that all my puppy owners have kept in touch with me and I know how they are doing and where they are. Harley is a very lucky boy. Harley grew up in a very loving environment with the company of the other dog to help him guide him on his way. He also had a great, firm however very loving and loyal owner in Sally.

The love and enjoyment Harley gave had a huge impact. It actually was the turning point in Sally’s life when she changed her journey. And started a whole new career. She started dog walking and dog day care. Her Mum Marie is very proud of her, its a big step moving on from employment to self employment; and making a success of it is admirable. You reap what you sow….. Marie your hard work has flourished. And beautiful Harley is the proud resident Labrador of Salspals.

You can find out much more at their website Sal’s Pals

Anytime I need Buddy or Bella looked after Salspals is the place I choose for my precious labradors to go. Whether its for a hospital stay and I’m forced to stay in due to treatment or an infection and my hubby has comittments that leave the babies at home all day, we will use the services. Or most definetly when I am feeling tickety boo and we manage a travel trip, especially on the harley davidson, and meet up with friends from the http://www.dunedinhog.com to attend a harley davidson ralley. Sally does a tremendous job of making you feel welcome, she really does love the dogs. And our dogs undoubtedly enjoy their time at Salspals. Their daycare is tailormade to your needs. Salspals is special.

Salspals is in an exciting period they are moving to their new premises; this is a fantastic new time for the business. It will allow the dogs to rest in comfortable and safe surroundings. Run around in a safe and secure area. However, dont worry there will still be plenty walks on the cards for our four legged friends.

Life is short and most certainly precious. We have to look out for those that we care for and those who care for us. The familiar sound in my house is the padding of Labrador feet at my side. Buddy and Bella are never far from me and that’s how I like it. The first time I left Buddy I don’t know who was more upset, it was like leaving a child at the school gates. I could hear him whimpering. In the 5 years I had him we had never been apart. Not for one night. When I left my tummy was in turmoil. I felt tears pricking in my eyes. Phone in my bag, so wanted to reach for it and call and say I would come get him. Not that I knew what I would do with him, it was 10pm and I was due at the airport at 5am. 10.45pm my mobile made a familiar sound it was a text with an image of Buddy and Bella on the sofa cuddling in. At 4-30am I received another one to say they were both ok, and asked how I was. When I landed there was a text and photo waiting for me. Then I knew my babies were going to be ok, in fact I knew they were going to have a great time.

Sally at Sal’s Pals – it started with a puppy

Hold your hand everday

As the pandemic continues.  We are still in lockdown.  Life continues to be on a different path.  Real life physical human beings I see; my husband of coarse, I live with him and so very grateful we have not only been lovers since 1982 but best friends.  My nurses; to tend to my gastrostomy tube, change dressings, etc, etc.  And see anyone from a distance at the door when they deliver parcels and mail.

Modern technology has saved my sanity.  Steve and I having a long lie on Sunday morning, it’s 9am and my mobile telephone has that distinctive ring.  I know it’s a FaceTime call.  Simultaneously Steve and I say know who that will be.  I click the phone and can hear the joyous tones.  ‘Morning, what are you doing in your Bed Granny’?  ‘Having a got chocolate’ is my reply.  We are having a three way conversation between our house (Steve & I) , Stuart & Alexandra, and Teeny & Grace.  It’s fab, we all blather loudly, the girls can’t believe we are still in bed. It’s Sunday, I say in my defence.  They have us laughing.  Along the hall we can hear the dogs.  They can obviously hear the girls talking and they are excited.  Can we see Buddy and Bella please.  I toddle Along the hall.  Bella is actually smiling.  They are pleased to hear the kids.  Morning Bella Boo, Morning, Buddy Boy, says Alexandra, miss you,  the labradors tails start to wag frantically.  Grace calls on Frieda the cat.  Alexandra asks ‘Granny can you go out the back and say morning to Birdie please’.  I go see the beautiful black lionhead rabbit.  The girls are ever so happy.  Right that’s enough I say, granny is wiped out now.  I sit on the seat at the table very happy and blether away .  I maybe can’t see them all in the flesh, however a video call like this makes the world worth living.   We all chat say what’s been happening and what the plans for the day are.

Both girls had plans to play in gardens.  Alexandra said she was going to be drawing and colouring in later.  Grace was going to be playing games.

 

Hold my hand and Smile Each And Everyday

Alexandra drew round her hand in her notebook,  she tore out the page.  Left the page for me with the drawing.  She said I can hold her hand anytime.  She said on a FaceTime call to me Granny I would just love to hold your hand everday

 

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I was so chocked up, it’s difficult to believe Alexandra has just turned 4 years of age.

At this difficult time in this crazy world we need to be grateful for what we have.  Make the most folks.

Alexandra and Grace:

The Arrival of The Coronavirus

We are approaching the end of March 2020 and this weekend we should be away with friends from the The Dunedin Chapter  ,

I so enjoy being part of this group.  It is our biker family.  From the second we joined we felt part of something.  A warm welcome always awaits us, a support network is available in variety of ways.  Help with the physical Harley Davidson motorcycles; buying, servicing advice, etc.  Things to do; runs, rallies, etc.  Friendship; many friendly faces, great companions, lots of advice, etc.  Socialisation; we all get together and have meetings, weekends together, nights out, lunch meetings, breakfast clubs, chippy runs, etc.  All in all I love belonging to The Chapter.  We are now on to our second Harley Davidson, I have been on motorcycles since I was under 5 years old,  on the back of my brother when my feet couldn’t reach the footpegs.  I have been a pillion to my hubby since I was 17 years of age and I’m now nearly 54.   We have had motorbikes the majority of our married life.  Fifteen months ago we thought we would dip our toes in the water and visit West Coast Harley Davidson for a look at the bikes and what they had to offer.  before we knew it we had  decided it was time to get ourselves a Harley, it was a little Street Rod.  We thought best start small  and not break the bank.  Just to see how we would like the ‘Harley way of life’ and boy do we love it.    While we loved the wee bike, it was just that, too small and So a few months later we traded it in for a beautiful fatboy low.  We got this one at Edinburgh Harley Davidson

This weekend a trip to Aberdeen had been organised by our Harley Davidson enthusiastic friends.  We were all getting together to stay a night in a hotel and have a night out and raise money for the air ambulance.   The plans were, to take a drive up together on the Harley Davidsons if the weather was warm enough and I was feeling up to it, if not take the four wheels and book in to the The Craighaar Hotel in Aberdeen

 

I was so looking forward to going to Aberdeen. Due to my health, the neuroendocrine cancer, the carcinoid syndrome, the treatment I need and the fact that I get fatigued very easily I don’t go out that often.  I find life difficult, some days a general task feels like I am walking around with a 25kg bag of sand on my back.  Needless to say I am very familiar with my own surroundings and am used to being in the 4 walls I live in.  I can be home for three weeks without crossing the door.  My district nurses come to ‘service’ my peg.  Change my dressings, administer my octreotide injection and deal with any other at home health condition I may require. They are wonderful and I couldn’t do without them.

Although I am used to spending time at home on my own, with the company of my two Labrador’s within my four walls I do spend quality time writing, which I enjoy a great deal and I have embarked on a course which I love the challenge.

Suddenly the world has been hit by an eerie storm, one which we have never seen the like before. The human race has been struck down with Coronavirus.   The arrival of the Coronavirus is here.  For a great deal of folk it has been fairly harmless, however for many it has proven deadly.   To find out a little about coronavirus visit – https://www.nhs.uk/conditions/coronavirus-covid-19/

3D_medical_animation_coronavirus_structure

 

Countries such as Spain and Italy are ahead of the UK and have many deaths and have put in strict measures. Here in the UK, we have had to take on a different way of life. Schools have been closed, where possible people are working from home, people are instructed to stay home unless exercising, which is only once per day. Social distancing has been put in place, with everyone to keep 2 metres apart. All these measures have been put in place to try and Stop the spread of Coronavirus. This virus is escalating and getting out of hand, we need to self isolate and stop it. Many people have it, are in hospital, some very poorly and on Ventilators. It’s all such a worry. People are wearing gloves, masks and using hand gel in abundance. Hospitals are running short of ventilators. There are more people needing the machine that the country has; something has to be done.

A team put their heads together – staff from formula 1 Mercedes , staff from University College London hospital (UCLH), and a team from university college London to adapt and improve existing CPAP in a process known as reverse engineering.   Basically they have helped create a breathing aid to help keep coronavirus patients out of intensive care.  You can find out more at the following – Mercedes F1 team helps create breathing aid

Life has become very strange for many people, our country is in lockdown, bars, cinemas, restaurants and many shops are closed.  Public gatherings are banned.  Plus many more other measures are put in place.  Some people feel sorry for themselves and are sitting at home whining and moaning, complaining they are bored and wishing they could get out of the house.  Whilst its understandable that they may be bored, sitting at home when they are used to working several hours per day and keeping busy.  Or going out and having fun, playing sports or going to the cinema, etc.  However, these restrictions have been brought in for our own good and it won’t be forever.  We should take time at home, learn a new skill, cook, draw, do a bit of gardening, enjoy reading a book, do some knitting or sewing, play old fashioned board games.  And most importantly our thoughts and prayers should go out to people that are in ICU beds in hospital, on ventilators, fighting for their lives.  This virus not only attacks the vulnerable like me, or the elderly like my 87 year old father, it sadly took the life of a young lady of only 21 years of age with no known underlying health conditions, it also took the life of a 54 year old doctor, the youngest person to die has been 18 years of age.

I did read a couple of pieces of good news the supermarket Asda is donating £5 million to   fareshare and  The Trussell Trust to help the country’s most vulnerable people through COVID019  Asda will prioritise access to stores for NHS staff as of next week every Monday, Wednesday and Friday 8am – 9am in larger stores.   Well done Asda

I know the next few weeks are going to be very trying for us all.  The NHS are doing a fantastic job in looking after the patients in the hospitals, at home, etc.  Carers are looking after the vulnerable the best they can.  Supermarket staff are stretched and pushed to the limits at times, the shelves look like its christmas, with the exception its not happy, clappy cheerful customers, its frightened folks walking into the unknown.

For me tomorrow Ive got my district nurses coming to do my dressings, service my tube and give me my two weekly octreotide.  Tomorrow the nurses will be gowned up, masks on.  Whatever will my labradors Buddy and Bella say, they won’t be getting their treats for mummy being a good girl and getting a very large needle jagged into her.

First Person with Net Cancer that made me smile :)

Over 6 years ago I went to an information day hosted by   Scotland’s Neuroendocrine Cancer Charity; The Ann Edgar Charitable Trust  I went on to go to support meetings every month.  There is a group of us that have became friends and a firm support to each other, which is lovely.  Some days its good to be able to talk to someone that you know really understands how you feel and you never feel patronised when talking to each other and at times you really need that ‘I know how you feel’ conversation’

The first person I saw at the information day was such a lovely chap and his wife.  He was  smiling from ear to ear and guiding all participants that were going into the conference.  Despite having never meeting the man before you couldn’t help smiling back, he had the kindest gentle smile.  He would stretch out his very long arms and direct  you into the room.   We have became friends very quickly and seen each other at most meetings.  There is a nice core number of us that try and get together and blether and spend time together.  I have had help organising the tea party and we all went out to the theatre, day out on the barge, a night in my local pub, singing songs and doing magic tricks and said friend getting up and helping out with rope trick – oh boy we  had so much fun.    Norman was twenty years older than me and called me the youngster.  I felt he looked out for me in a way when we sat together, it was his nature.  When I organised the tea party, and my goodness what a lot of work went into it, he said, now young lady before we open the doors to the public you get half an hours shut eye.  Sometimes he would quietly talk and other times he would stretch his long arms like a giant and bellow what he wanted his audience to hear.  Norman’s first words to me were always and how are you today my dear, is life treating you kindly?  He would have that big grin on his face and it would warm my heart.   Although Norman was his own man, him and his wife came as a pair and they were very much together.  One of those most beautiful relationships each partner knows when the other has had enough and needs to leave, when they are tired, hungry etc.  They have the best tales to tell from their travels on holiday.  They separate across the room and yet communicate with just a glance and before you know it they have made a decision and you are saying cheerio to both of them, see you next time.

This blasted life limiting illness  at times imprisons us in our houses, makes one feel so ill you can’t do a thing, medication, hospital appointments, etc become a way of life – however, meeting each other and sharing some of the good and the bad really helps me get on with my journey.

I found out sad news last week, my pal passed away.   Norman was diagnosed with neuroendocrine cancer 13 years ago.  I feel privileged to have known him and spent time with him and Margaret for the last 6 years.  I was diagnosed with carcinoid syndrome 10 years ago, whilst a sad occasion like this leaves one thinking about our own mortality, I count every day as a blessing and am happy with the treatment and care I’m getting from my consultants, doctors and nurses.

Today was Norman’s funeral, unfortunately with the coronavirus the world has gone a little crazy.  We are on a lockdown situation and are living under certain restrictions.  Funeral services are allowed to go ahead, however are restricted to immediate family.  I was able to watch the service on a live podcast.  I sat in the comfort of my own home in front of the open fire and watched Norman’s funeral service.

Norman Boe was The First Person with Net Cancer that made me smile 🙂  and I will miss him so very much.   Thank you for being my friend.

“Go my friend and enter into eternal joy and peace, dance with angels in eternal light and love”

Warm Welcome in Ellon

As I woke on a bitterly cold February Saturday morning to the sound of my granddaughter’s singing voice I remembered I had something to look forward today.  We are making the trip over the Queensferry Crossing, over to Fife,  driving up the M90.

For me this is the best week for travelling, Evelyn had been in on Tuesday not only to service my gastrostomy tube but to administer my octreotide.  This is a malignant suppressant injection I get every 14 days.  It is licensed for every 28 days at maximum dose for people like me with added complications of carcinoid syndrome.   My ‘numbers’ are on the high side with my 5hiaa, my symptoms are awful and so we have it – maximum dose every 14 days.    The nasty injection is worth it.  Fewer visits to the bathroom (reduction from 12 times bowel movements per day to 4) and looking less like a character thats on tour with Ribena Juice Company.

The Our destination is a few miles north of the granite city, Aberdeen.  I have visited Aberdeen on numerous occasions.  My Grandmother is from this wonderful area of the world and my great aunt after a great deal of travelling finally settled and ended her days in Aberdeen and I have such  fond memories of visiting with my Mother as a child, playing in Duthie Park, building sandcastles at the beach. There is so much to do.   My most favourite thing alrways a visit to The cathedral church of St Machar

We were travelling up to stay over with relatives, Steve and I are not always the easiest house guests, we both blether at a million miles per hour, talk over one another, and finish each others sentences.  We bring an awful lot of luggage, I alone need a suitcase and a holdall for one night’s overnight stay, I have my pump, a lot of medication, syringes etc. I know I have my blog, however we are private folks and there are things we like to keep to ourselves.  We very rarely stay with family or friends, we usually book into a hotel however we both felt we would feel comfortable staying with Pauline and Les for our first trip to Arthrath.  Located 7 miles north of Ellon.

 

 

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Pauline sent me a photo of the sign at the end of their road, heading to their house.  The road is rough.  To me if it was covered in snow it would be more suited to skis than a car,  the large ditches in the road resemble the moguls on the ski slopes I have skied, it distinctly reminds me of the white lady I skied on the cairngorms, everywhere you turned there was another mogul to go down.  Ah, such happy memories.  As we drove down the road to the house the car bounced up and down, in and out of the ditches.  I had the feeling I wanted to lift my legs, I could hear my ski race trainer from my youthful days, the wonderful Hanz Kuval, say bend, stick, turn. As the now not so shiny BMW’s wheels dropped into another deep hole.   We parked round the back of the house as recommended by our hosts.  And so it was so much easier to get in the house, sheltered from the wind, a straight walk from the car across the decking into the porch.

 

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Where a very warm welcome awaited us.  From the minute we walked in the door nothing was too much trouble.  Thirty seconds in and the kettle was on.   The most beautiful  house with comfortable furnishings, welcoming signs of grandchildren; some toys, photographs, canvases, etc that made me feel very much at home, however, gave me a pang in my insides and a yearning to see my beautiful granddaughter.  There is an array of animals located in various parts of the house – they are amusing and you feel you want to have a conversation with them.   And I most certainly did.  Although I’m not sharing any secrets.  As I said our hosts were fabulous, they couldn’t do enough for us, coffee, tea, beer and wine on tap.  Nibbles to munch on whilst lounging on the sofa and leisurely blethering.  A lovely enjoyable afternoon to sit and have a natter, let me get another afternoon feed on pump and a bolus before getting ready to go out for the evening.  Pauline is the constant nurse and continually picking up after me, a welcome help and yes you feel safe and secure in her company.

 

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I go through to our bedroom for the night to get ready, the room is huge, I more than appreciate the space, plenty of room for all my gear.  The bed is ever so comfortable with luxurious bedding and the most comfortable plump feather pillows.    I was most appreciative of the large ensuite bathroom.  It was bigger than most peoples family bathrooms.  there was a stand alone bath, toilet, sink and bidet.  With plenty of room to move around which is very important to me, especially first thing in the morning when the bones are not quite moving as they should be.  The room is so inviting I could climb onto the bed and snuggle in and relax.  However, I know I will enjoy the company of my hosts for the evening and get myself ready.

Les did the honours and drove us to Ellon .  We were booked into The New Inn Hotel, Ellon for a meal.  The hotel was bustling and nearly every table taken.  We arrived half an hour earlier than our reservation.  The staff greeted us with a warm smile and were very accommodating and set us up a table within a couple of minutes of us arriving.  We ordered drinks.  Looked at the menu.  The delightful waiting staff were very efficient and very soon my three companions were enjoying their evening meal, Steve and Les began with starters which they enjoyed immensely and then fairly quickly the main meal came,  our hosts both ate Seabass, my hubby ordered the house burger and I picked at the scampi.  We had this delightful waiter that looked latin, he was tall dark and handsome.  Most of the evening Pauline and I teased him, as we ordered our desserts we asked where he came from since we thought he had an unusual accent.  He told us he was from Peterhead,  Oh we thought you were from somewhere like Italy we said in disappointed voices, you are a “Peterhedien”  oh what fun we had.  The desserts arrived,  and yes, naughty me  had some,  I had a little eton mess.  And yes it was worth having.  Steve had the cheese cake.  A nice touch on top of the cheesecake is scottish tablet.   We all enjoyed the food, the service was excellent.  Would I go again.  Certainly would.

 

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On leaving the hotel we went a short walk across the car park to a friendly pub,  The Tolbooth Pub, Ellon.  As I walked in I soaked in the atmosphere; it was warm and friendly.  It was busy with a variety of ages of folks.  Sitting up at the bar stools were a group of ‘middle aged ‘ folks.  At various tables were various people, as were in the lovely booths.  We made our way to a table beside one of Les and Pauline’s friends.   In one of the booths were five young lads, I’d say in their early twenties.  They looked happy and were sitting blethering and laughing, next thing they started singing The northern lights of Aberdeen.  I felt my heart pang, it was a song sang to me by my Mother, one we would sing together.  They sang, when they got to the last line Pauline and I sang along “To my home in Aberdeen” I could feel the tears, however happy tears.    I turned and looked over to the lads at the booth the young chap with the curly hair lifted his whisky glass in my direction, gave a wink and a cheeky smile – made my night.

On returning to the house Pauline and Les looked after us, we chatted into the small hours of the morning and before we knew it, 3am hit the clock.

I woke on Sunday to my FaceTime call with my 4 year old granddaughter, Alexandra, we had a wonderful discussion.  Her first words  of the conversation were you are coming home today and final words were I love you…. lots of stories in between.

At 10.30am we went to visit Steve’s auntie Margaret in Aberdeen before going out for lunch at  The Cove Bay Hotel . There were 11 of us for lunch.  And what a great lunch it was.  It was so lovely to spend some time with Steve’s cousins and have time for a catch up and a blether.  We had a table by the window with a beautiful view of the sea.  Auntie Margaret and I were right by the radiator, we were toastie.

After lunch Steve and I made our way back to East Lothian.  We had a quiet drive home.  It didn’t too long at all.   It was lovely to see our cottage.  Spent a relaxing evening with our dogs at our feet.

A massive thank you to Pauline and Les for introducing us to Arthrath.  And making us feel ever so welcome and not like visitors at all.

Big thank you for The Warm Welcome in Ellon

 

Hurrah 😀 For Dunedin Chapter

As most of my regular readers, friends and family know Steve and I are proud owners of a Harley Davidson motorcycle. For the last year we have been very happy members of The Dunedin Chapter http://www.dunedinhog.com

 


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I mentioned the motorcycle club in a previous post. All folks have welcomed us with open arms into the body of the Kirk. For us it’s been a lifesaver. Gave Steve and I new people to meet, places to go. Steve, can go out ride the bike Without me and meet up with others, and when I’m up to it we go out together and boy what fun we have.

The Chapter isn’t all about riding bikes mind you. They do a great deal of charity work. Easter egg runs, Santa runs, fundraising for The sick kids, Kats Mission, need I go on. I am very proud to be a member.

TAECT promotes awareness of neuroendocrine cancer and offers support to all those affected with cancer, net tumours, carcinoid syndrome; patients and their families/friends/carers. Have regular support meet ups all over Scotland. Health information days with drs and nurses giving up their time to offer advice.

Last weekend the chapter had a dinner dance in Grangemouth. Edinburgh Harley Davidson kindly donated a couple of leather jackets and many members donated raffle prizes. On the night, Ben and Hilary went round the room with raffle tickets to sell to us party members. Drew the raffle and there were many happy faces. A very big well done to all the folks who donated and another massive well done to members for buying raffle tickets. £830 was raised for charity.

The Chapter decided to donate the £830 to one charity. That charity is one that has given me so much support, particularly over the last couple of years. Without their kindness and support at times I would have been quite lost and lonely. This charity is Scotland’s only neuroendocrine cancer charity – The Ann Edgar Charitable Trust. http://www.taect.scot

 

As most of you will know TAECT works very hard at promoting awareness of neuroendocrine cancer and offers support to all those affected with cancer, net tumours, carcinoid syndrome; patients and their families/friends/carers. The charity has many regular support meet ups all over Scotland. Information days take place with consultants, oncologists, drs, nurses giving talks and offering advice.

 

I would like to say a big thanks to the two groups I belong for different reasons. However, both make me feel very welcome and let me be ME, no one notices my gastrostomy tube, makes comments about me not eating, etc. Its wonderful. Riding on the back of a harley davidson with a peg feed isn’t always the easiest. But we manage. Life is for living and I want to enjoy and spend as much time as I can with my wonderful hubby and hear the roar of that Harley Davidson Fat Boy ………… nothing better

 

 

 

 

 

 

 

 

3 years later and 3 kg lighter

Three years since I have came home from hospital with my peg feed after my sepsis.  It has been a learning curve of a journey with great deal of highs and lows.  I’m very fortunate to have a fantastic support network; the lifesaving NHS staff, including hospital consultants/nurses/dieticians, GP surgery, home visit team, CENT team and my excellent regular community visits I could not do without from my district nurses; amongst other things they deal with my dressings, peg feed and administer my lanreotide, the emotional support they offer is invaluable.

One of the members of the CENT team comes to see me on a regular basis.  I get weighed, we discuss how life has been for me.  How I have been , what meds I’m on and what feeds are going down my peg.  They are always on the end of the phone if I feel the need to talk in between visits or if I have a question/queerie/worry.  A great friendly bunch.

 

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Kat from the CENT team at Edinburgh’s Royal Infirmary came to see me on Monday.  We had a good chat and discussed my feeding regime and the speed of the pump.  I told her the great news that we managed a wee break to Ibiza.  My son Stuart telephoned the airline and told them about my medical condition and that I needed the pump feed and 4 bottles of 500ml per day and 5 bottles of 300mls per day – working out to quite a weight.   The airline agreed to give me free 30 kg baggage there and back.  Certainly cannot complain about that.  After our general discussions I stood on the scales.  Not happy; either of us.  I’m 3kg lighter than when I came home with the peg feed fitted 3 years ago.  I could have cried.  I could tell Kat knew I was disappointed, I couldn’t hide it.  Kat mentioned how well the tpn worked when I was in hospital.   I agreed, that was what saved me and put on the weight when I had my sepsis.  She recommends that she writes to my consultant and let him know and suggest that I get a central line – picc or hickman and get home tpn as well as my peg.   Got my cardiologist in December and see my consultant after the year; will discuss this weightloss and eating regime then.

 

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