The first Friday in February is wear red and raise awareness for heart disease. You may think what’s the link between a cancer patient and heart patient? Genetics, bad luck, unhealthy eating, poor exercise, etc. It may be any of these if a cancer patient develops heart disease. However one thing that is a common link – neuroendocrine cancer patients with carcinoid syndrome have a risk of developing carcinoid heart disease. Many patients get routinely scanned with an echocardiogram annually. Help raise awareness. Have a heart wear red on February 2nd 2024.
February is heart awareness month. Wearing the bright vibrant colour will not only make you feel better but it will help others take notice. Put on something different and draw attention- grab that person’s conscience.
Carcinoid heart disease
Carcinoid Heart Disease affects 20% of people with carcinoid syndrome it is caused by the build up of plaque in the heart valves. It affects how the heart works usually leading to surgery.
If you are stuck for what to wear on the first Friday in February think red! Encourage your work colleagues, friends, etc. Spread the word it’s good to talk and please have a heart wear red on Friday February 2nd 2024
Today is Net Cancer Day. November 10th is the annual awareness day for Net Cancer. So many people wait for a long time for a diagnosis. Go back and forth to their doctors with symptoms and get told it is irritable bowel or something else other than the actual cancer. When Doctors are taught ‘when you hear hoofbeats, think horses not zebras,’ meaning a doctor should first think about what is a more common—and potentially more likely—diagnosis. Net Cancer and Carcinoid Syndrome is rare hence not the first thing the doctor looks for. Awareness needs to be raised for this cancer. Today is NET Cancer Day and the hope that the message gets around the world – raising awareness of this cancer.
Since I was a young child I have rode on motorcycles. The noise of the bike engines, the smell of exhaust fumes. Getting caught in the rain, remembering when travelling on a bike you can only carry small amounts. Familiar helmet flat hair. Years before health and safety set in; I would sit in front of my brother with my legs wrapped around the tank at 4 years of age and have a little ride on his motorcycle. Oh what wonderful memories. My first ride on a Harley-Davidson®, I would have been 13 years of age and on the back of a family friend. We called him Tam Harley. Steve and I have been riding together since we were 17. Started on a Suzuki, when we got married we had a Honda, we have had Kawasaki’s and BMW’s and now 39 years later since biking together we are our third Harley-Davidson®. For us Harley-Davidson riders the last weekend in August is a special one. We attend the fabulous bike rally in Aviemore Thunder in the glens.
As a child growing up bikes were prominent. The rally Thunder in the glens (TITG) hosted by Scottish HOG® Chapter Dunedin #9083. The rally is in Aviemore Scotland. For me this place is a very special, growing up I visited this town often and went skiing, wild swimming, hillwalking. Had so much fun skiing down those glistening white slopes. My heart beating so fast whilst I was racing downhill wishing I could beat the clock. Once again for me Aviemore brings passion, warmth exhilaration. The four seasons in an hour hasn’t changed. I have merely switched my walking or skiing clothing for biking gear and layer up and strip off as necessary. With the exception of Friday we are certainly blessed with warm and sunny weather for bank holiday weekend weather for Scotland. It was so lovely to go around in a t-shirt on Saturday after the mass ride out. And when we were up the mountains on Sunday the sun was shining. Thunder in the glens at its best.
The Three thousand sell out three day rally is in its 24th year. The mass ride out on the Saturday gets a great deal of participants on the pavement, in their gardens along the route, in the fields, etc. Families waving, smiling children. It is a happy day for many. The Sunday ride up the Cairngorm mountain is an emotional one for me, it brings back many happy memories of my skiing days. As well as a very sad occasion when I lost a friend on the mountain. The great thing about being able to sit on the back of the bike is you can sit and take in the view, which no one can deny on these routes is a beautiful one. And you can relax and think of all that has gone by over the years. The Sunday afternoon at the rally site there were charity rides. Where volunteers were giving rides around the site on their Harley-Davidson for a donation to charity. In the evenings there was an absolutely amazing choice of live music to choose from.
As well as my hubby being the Safety Officer. This year on the Mass Ride Out Steve was a road Marshall it gave me a chance to take photos when we were at the junction. I got a super opportunity to take photos of riders, some with their flags flying high, others waving and smiling.
While up at the rally you can stay on site, stay in a Macdonald Hotel or camp. Or choose to stay somewhere else and travel to the site. Whatever you choose you are usually guaranteed to have a super time. If you are away and want to listen to something on your phone, I found the perfect item; its one of the World’s Smallest Alexa Built-in Waterproof Mini speakers You can buy it from Amazon. You connect it to your phone, listen to it anywhere, anytime.
2023 will be the 25th anniversary will you be there?
The next event I am looking forward to is Halloween. Need to get some decorations. An ideal place is here https://giftdelivery.co.uk/?ref=DrElizabeth or at Pomchick -Why don’t you have a look? You never know you may find something you like, treat yourself or someone you love.
Safety is paramount. Make sure the battery on your vehicle is in good order. The battery guys have great deals – check them out.
Absolutely great gift I will be buying next on my list is from Perfume UK
Have a look on this website. These products are fantastic. Earhubs.
Living everyday with a chronic illness can take its toll. Especially when a rare disease such as carcinoid syndrome and doesn’t trip of the lips easily. Most people haven’t heard of the cancer that comes with it let alone understand it. The daily routine of creams, feeding, blood sugar checking. Not to mention the absolute fatigue. What makes life much easier is routine. And most importantly I make sure I find a special time for friendship, relaxation and love.
In between my weekly tube services, 14 day octreotide treatment I find time to get some normality into my life. The one thing I promised myself is when the words incurable rang in my ears; I most certainly gave myself a talking to and will always fit this disease round my life not my life round the disease. My family is hugely important to me. I will always find the time to have fun and a willing ear. As time is going on and my condition progresses what is becoming apparent to me is what helps keep me sane is friendship, relaxation and love. The unconditional love I have for my husband and children (and their children) goes without saying. I love and am loved by some beautiful people that help me get by. Friendship is amazing, it is comforting to get woken by your mobile phone with a message to ask how you are. Or just to say hello. Sometimes the message actually may be asking for advice – I like that. Totally feel needed. Relaxation is essential for us all, enjoy.
I have been having a particularly difficult time recently with my rig. However on Saturday it was the most beautiful day and there was a Chapter Ride organised. We are members of a Harley-Davidson® bike club – The Dunedin Chapter. We get together for rides, social events, charity fundraisers. Superb way of getting out on the bike and meeting new people. Steve was going on the Harley-Davidson® on the ride. Some of our friends were going on the ride. I decided since it was only a 60 mile run I would go to. Super weather, beautiful scenery, great friends and on our latest Harley-Davidson®. Of course I clambered on the back of the armchair seat. Feed linked up and away we went. A wonderful ride to The Big Red Barn.
After a wonderful relaxed few days seeing and chatting to family on the phone. Speaking to friends. And getting out on the bike for a while. I am now ready for my hospital appointment tomorrow.
Think I will get on the website Handy Candy and get a few goodies for the house. Life is good.
Already we are half way through the year of 2022. Finally after the last few years of PPE, mask wearing during covid and lockdown we are getting some normality in our lives. Covid will never disappear however we are dealing with things and actually getting out meeting each other and it feels so good. Most of us have missed out on something in our lives, a celebration, graduation, that wonderful holiday we had planned. Sadly there has been difficult times where we have not been able to be together and sickness has kept us at arms length. I most certainly cannot fault the way I have been treated by our good old NHS. My treatment has never stopped or home visits from my District nurses right through the pandemic. Now that time has moved on many people are planning trips to other countries, including three of our friends from Switzerland. Whilst on their trip to Scotland we managed to finally have our bikers BBQ
I am fairly certain that covid will not leave us in a hurry and at the moment it is rearing its ugly head. With a notable increase in diagnosis again. However that is most likely to us all mixing and going out on adventures. A very large majority of us are vaccinated, it won’t stop us getting covid but should hopefully lower hospital admissions and death rates. I have been extremely grateful for the care I have had all the way through. The vaccines I have had. And the continued care and management I get with my cancer team. When I am up to it I enjoy time with buddies and going out on the Harley-Davidson® with my hubby.
The final week of June is always an eventful one for us. A birthday for Steve and brother in law Alan. So now three years later our buddies could finally ride their NC500 trip, travelling from Switzerland on their Harley-Davidson motorcycles. We were so happy to spend the final three days with them. Hear of their travels, have a BBQ at ours, go out to The Hard Rock Cafe in Edinburgh, and on their final day travel with them on their way to the ferry and visit Holy Island and Bamburgh Castle. What fun we all had.
The BBQ was great fun, we chatted, laughed, there was lovely food cooked by head chef Steve. A warm fire pit for those that felt the chill in the air. Steve, Deke and Ewan treated us to some tunes and kept us entertained. I am pretty sure everyone went home with full bellies and pretty satisfied and happy. Our dogs loved having everyone round.
The most important thing I have learnt from hitting the brick wall that day and hearing the words incurable is life is for living. I love and value my family, good friendship and spending some time to get out and see the sights can be energising. However, I do so enjoy taking time for myself. In the way of putting my feet up, sitting in silence and enjoying a jolly good rest with my most beautiful labradors, Buddy and Bella.
Our house is usually always full of chatter. We have the uncanny skill of speaking and listening at the same time. Grandchildren and labradors bring much needed laughter. They are my essential sunshine on a rainy day. Most definitely turn my frown upside down and oh yes help me smile each and every day. I can always say what great fun granddaughter’s can bring.
If you were to add the age up of the three of them you only reach the ripe old age of nearly 12. Firstly there is Alexandra. She is the eldest at just turned 6, Ellie comes second at 5 years of age and Luna will be 2 at the end of the month. The girls all play so well together, shrieking up and down our hall. Running around the garden. Playing with the garden toys or walking the labradors in the back field together with me, all of us singing and chatting away. The last time the girls were playing together they went to Vogrie Country Park and what fun they had.
Individually they all like to come play at ours too, get some grandparent time. Bake cakes, do some arts and crafts, play games, garden with Granny, clean the Harley-Davidson with Papa and they most certainly love getting in the Wetroom and having a long shower, playing water games, singing at the top of their voices. We all love to go walking with Buddy and Bella my Labrador retrievers. Our back field is ideal, a wonderful safe environment for both dogs and children. Or go to unleashed Dog Park at Pencaitland and enjoy some fun.
It can be the darkest day, you could feel at your lowest ebb and these little cherubs will cheer you up no end. Melt your heart on the coldest day and yes oh yes they can all talk. Proper little chatterboxes.
This Easter weekend was particularly lovely. Alexandra helped Granny put some stickers on the window. Girls helping Papa with the ride on mower. Then oh so much fun hunting for some eggs.
Undoubtedly grandchildren fill a hole in your heart you did not know existed. For this reason I would recommend them to anyone.
How on earth did that happen? Where has time gone? My shining light, dependable caring compassionate granddaughter is a whole six years old. Wow! Alexandra is a crazy funny girl who makes me laugh and always has my back. Chattering away playing at ours, rattling the keys on the keyboard together with me as I write she is the most wonderful company. Since she turned 6 months old she has been coming to our place, for an afternoon, then an overnight, now its for whenever the need is there or she wants to come and stay. Our home is her home just as it should be for grandchildren. On her birthday she came to ours in the afternoon to blow out her candles on her birthday cake – let us celebrate because our beautiful box troll has turned six.
As a family we enjoy spending time together. At our home, it may involve cutting the grass on the lawn tractor. Going on holiday together, or to an event. Out for a walk with the dogs – my precious labradors. And most definitely celebrating a birthday like this one. It doesn’t have to be a big affair, just who matters sitting on the sofa singing happy birthday. It’s been a funny old time especially for a child of late with the pandemic, isolation and face masks, no birthday parties. However the most important thing has never left – love. Knowing that we are loved we can get through anything.
Our 6 year old sunshine girl Alexandra turned 6 – my I blinked my eye and she has grown……….
As treatments are started we struggle to find enough time. The patient population exists, it is hoped that awareness is increased of individuals, families and friends. The one thing that is always the upmost priority is health. For medical science to progress, people to get better treatments, hopefully find cures or at least a better or longer life span for a debilitating health chronic disease. We need to conduct gene therapy programs or clinical trials. Clinical tests give people hope; delivering the right information and having an impact on quality of life. Some clinical trials have placebos. what’s the cost of a placebo?
A great number of participants feel valued when working together in gene therapy programs and clinical trials. On asking some patients that have taken part in trials they have said “being part of a trial was a real privilege”
Some programs/trials are the first and only one of their kind. Where there is no cure, only treatment available.
One patient who has an extremely rare disease and is also a charity trustee said ” being part of the trial is important, not only does it make my life better but it can help with the lives of others. People with the same condition can benefit. As a trustee, I hope to encourage other patients to take part, offer advice and information”
Trials come in all shapes and sizes. Run for varying lengths and need differing amounts of volunteers. However they all need to have rules, legislation, outcomes, statistics. It is extremely important the trials are carefully monitored and measured. We get accurate results and truthful information. This determines whether the trial is a success or not. Did it work? Was the drug getting to the target? On setting up the trial decisions have to be made how is has to be run. Yes people have to get recruited. At times recruitment can be rather difficult and challenging. Even before the trial there are usually pre trial health examinations. With a disease such as Motor Neurones Disease (MND) only 10% of people diagnosed with the condition are eligible for for many trials. Many clinicians, scientists, etc would love to try and reduce the burden in clinical trials. It is essential in all trials that we have all patients working in the right protocol. Working in partnership; researchers and patients working together trying to deliver better clinical trials.
In setting up the trial one of the questions for the researchers – placebo or active compound?
When a trial is running and people are depending on the outcome of this trial. They are more often than not willing the trial to have a positive result. Wanting it to be a success and the drug to be able to treat the medical condition. There are a great number of people taking part in the trial that are disappointed that they received a placebo. Some would rather there were other ways than having a placebo in the trial, such as the gold standard.
Something we have to remember is the world is small. We all talk. We need support. We find our own no matter how far…… In this day of technology especially we can chat on the telephone, share information on social media, computers, visit different countries, etc, etc. Charities and groups get together and encourage patients to talk and they get to know one another so no matter what country they live in, the language barrier, how far away they are from each other – they still communicate. They will know if a fellow patient is going on a trial, or if they take sick or devastatingly if they die. Families will always talk. If a trial takes place and a patient is in the trial someone will tell someone else, good or bad news will travel.
There are issues around placebos. Most people that have been asked answered saying they would rather have the drug than the placebo. In a discussion one person commented and said he was fairly confident researchers would not want to give their children placebos in clinical trials if their child had a life threatening disease. What you have to ask yourself is could you live with yourself if you had 10 very sick children, 6 drugs and 4 placebos, they go into a clinical trial. The trial works. The drug cures the or gives the children a longer life span. the other 4 – get nothing out of it. Six months after the trial you hear that one of the children has died. Would you as the researcher conducting your next clinical trial have placebos in the clinical trial?
It’s Monday morning like no other for most people. As I look out of my south facing cottage window I see grey clouds circling above the Lammermuir hills, on first glance its a bleak outlook. My telephone rings and anyone that knows me will guess that I am then preoccupied for at least an hour. Back to what I enjoy; I greedily set up my three apple devices with devoted labradors at my feet. As I lift my head to pick up a book I looked out of my ‘favourite view’ window. Was that a glimmer of sunshine trying to get through? As Bob Hope once said about Scotland it’s the only country he ever came to where he experienced 4 seasons not just in one day but in one hour. My yes, it was the clouds had lightened and the sun was beginning to show face. What looked like was going to be a rainy cold blustery day was turning out to be a fine day, perhaps not the best however one with promise and prospects, what more can you ask. Today is Monday 28th February 2022, today is Rare Disease Day.
I like to believe that the future for Rare Disease is parallel to today’s weather. One with good prospects and promise with a ray of sunshine to keep that frown upside down and remind us to smile each and everyday.
Living with a rare disease for most affects not only the person with the disease but those around them, whether they are family, friends or work colleagues. On getting a diagnosis, for many it is a life changing situation. Living with or getting diagnosed can be extremely hard to live with; physically, emotionally and financially. Some only get a very short life span. Others have many years of life and have to learn to manage. One big thing in common is many rare diseases are chronic. It isn’t always easy admitting you find life a struggle. However there are charities, hospital groups, clubs, various volunteer groups, etc and great deal of people affected benefit from support organisations; someone to talk to, somewhere that really understands, respite, etc, etc.
So what is a rare disease? 1 in 17 of us world wide will be affected by a rare disease at some time in our life. Carcinoid Syndrome is one of them. Huntington’s Disease,is a rare disease another is Cystic Fibrosis. The majority of rare diseases are chronic, progressive and genetic not curable. Only manageable to an extent. Living with a rare disease can feel very isolating and scary. Globally between 3.5% and 5.9% of the world population is affected with a rare disease. There are six thousand different diseases affecting 300 million people. In the UK, it is estimated that there are 3.5 million people affected by a rare disease.
Many patients with rare disease’s consult with more than one specialist. Often as many as five. Going to various outpatient clinics can take its toll not only on the patient but on the people around. The care at the hospital in the UK is free yes, however the patient has to get to the hospital for treatment, blood tests, scans, etc. Fuel in transport, or cost of public transport, the cost of eating out, etc etc. Then there is the physical cost to the patient. I was speaking with a consultant the other day and she spoke rather concerned that one of her young patients said she had 52 clinic appointments in the year. Equating to one per week. Yes she has an incurable rare disease, however she is also a student, desperate to pass her exams. The doctor sounded genuinely concerned for her patient; saying she thought this could affect the patient’s wellbeing on top of their condition.
What is Rare Disease Day? This is a world wide event for one day – always the last day in February. Celebrating Rare Disease’s. Promoting awareness. Sharing videos and experiences across the world. The aim of the day is to raise awareness, spread hope and solidarity and bring the worldwide community together. Hoping to improve access to treatment and medical representation for people and those affected with rare diseases.
It is go good to see so many people pull together for such an event globally. When these people are at home feeling isolated or trying to go out and are anxious they need to get their “big person” pants on. Life can be so difficult and cruel. It’s heartening to see so many people affected by rare diseases with glass half full attitudes. Medical staff fully behind them and organisations supporting in what needs done. Let’s hope for the day that we can get some treatment and you never know maybe even a cure for some of the diseases. However, for now let us manage the best we can.
Most people in life know someone with cancer. Or are knowledgable about signs or symptoms of some kind of cancer. However the rarer less known conditions need the help of Doctors, writers, patients, etc to promote awareness to get their name out there and help others know what to look for. “Doctors are taught ‘when you hear hoofbeats, think horses not zebras,’ meaning a doctor should first think about what is a more common and potentially more likely—diagnosis. In oncology zebras have to be thought about. If a clinician isn’t as familiar with rare conditions, they may spend too much time looking for the proverbial horses. One such rare disease is Neuroendocrine Cancer and carcinoid syndrome. November 10th is Net Cancer Day. For the patient and the diagnosis it is all so important for the doctor in the big important Think zebra not horse.
Getting a diagnosis of Net Cancer can be difficult. It often goes misdiagnosed and the diagnosis is delayed and very often a person is told they have the cancer once it has spread to other organs and is incurable.
Living with Nets and carcinoid syndrome isn’t always easy. There are days it can really take over your life and just getting out of bed is a real struggle. However, there are great treatments and support networks out there to help you on your way. Looking after your body, eating the right things, meeting up with people and talking can all help in your cancer journey. I certainly know meeting up with likeminded people from The Ann Edgar Charitable Trust and sharing experiences has been a lifesaver. Making super friends along the way, the only down side is losing some dear ones to this damn condition.
On this eve of Net Cancer Day I think of the amazing buddies I have made since the day I was told I had carcinoid syndrome. I keep up with and chat to friends we share what’s going on in our medical life. I have lost and miss some lovely zebra, including Ann, Didi, Pam, Janny, Margaret, Becky, Norman, Linda. Celebrity zebra have included Audrey Hepburn,Steve Jobs, Aretha Franklin.
Audrey Hepburn’s son did a newspaper interview – you can view it HERE
Common symptoms of NETs include:
Flushing (redness, warmth) in the face or neck without sweating.
Diarrhea, including at nighttime.
Shortness of breath, rapid heartbeat/palpitations.
High blood pressure.
Fatigue, weakness.
Abdominal pain, cramping, feeling of fullness.
Unexplained weight gain or loss.
Wheezing, coughing
The symptoms of a neuroendocrine tumour depend on where in the body it is and what hormones it produces.
Diagnosing neuroendocrine tumours
Many tests can be used to diagnose neuroendocrine tumours, including blood tests, urine tests, scans and a biopsy (where a small tissue sample is taken for closer examination).
octreotide scans – where slightly radioactive liquid is injected into your veins and a special camera is used to highlight any cancerous cells
Treating Net Cancer and Carcinoid Syndrome
Every patient has their treatment plan tailor-made for them. No one person is exactly the same. They may have the same germ cell. Could have been diagnosed with almost literally the same diagnosis – it does not mean the treatment will be the same. All our bodies react differently, we give off different hormones, etc. And to be honest we may not have the same attitude to the consultants conversation in the room.
Treatments Include:
For some people surgery is an option.
Somatostatin Analogues – may be used to help control the secretion of hormones if abnormal levels are being produced
Embolisation – Treatment that blocks the blood supplyusing chemotherapy, radiotherapy or radiofrequency ablation
Treatments used for some Inoperable and metastatic cancer:
Everolimus is taken as a tablet, sunitinib is taken as a capsule and lutetium is given into a vein.
Over the last few months life has certainly had its up and downs. As usual getting the usual carcinoid syndrome treatment. Not feeling the best at times and all that comes with it. However on the plus note covid restrictions have been a lot better, I have seen my family much more, Steve has been on the Harley-Davison®. We managed an evening out to see Del Amitri live in Edinburgh, at the Queens Hall. Our youngest son graduated from university. I got head hunted for a job from a very reputable company. We have a lot to be grateful for. As I was sitting working on my computer my phone gave a familiar bing. I looked over, it was letting me know my screen time was down. Most likely because I have been writing more this week, and I have gave the social media platform Facebook a wider berth over the last few weeks; mainly due to seeing the same old…… Although I have to confess I did see a few things on it today that made me smile, and other things that put me off…… on reading down the page I thought what has made me smile today?
Firstly waking up and being alive makes me smile. Every day is a bonus. I love where I live and who I live with. I open the curtains, roll up the blind in the morning, look out my bedroom window and the view of my back garden is a huge field where I enjoy walking my loyal Labrador Retrievers.
Buddy sitting at the front door
My boy Buddy is my assistance dog. He takes great care of me. Knows when my glucose levels drop. When my heart is misbehaving. He was such a great chap and tapped my nurse on the knee on Wednesday when she was attending to me, I asked her to check her blood sugar level it was sitting at 3.9 – he knew she was hungry.
My family not only make me smile they make me laugh. We have fabulous times together. Play old fashioned games, sit and talk, sing together, dance in the house and most importantly love each other.
Writing keeps me sane as well as makes me smile. Jotting down in a diary, keeping a journal, and writing for a living. I simply love it.
Listening to music most definitely made me smile today. Whether it is music on Apple Music, reminiscing about times gone by, Steve strumming his Martin guitar and beautifully singing along or Alexandra practicing her heart out on the violin or getting a guitar lesson from her Grandad. All those tunes give me such a warm feeling inside. It made me remember about that time……well will keep this one to myself…….
Remembering yesterday, listening to stories about the trip out pumpkin picking and dancing around the house and face painting.
It was the bank holiday weekend and the sun was shining. For more than a year I could only fantasise of meeting up with friends or going out to events with fairly large numbers. The run up to the weekend was fairly difficult, my gastrostomy site was leaking, the pain set in and my skin became red raw. By Wednesday, treatment day with my nurses I was needing a swab taken and had a bit of a temperature. GP phoned me at 7.45am on Thursday morning to let me know antibiotics were ready for me. Woo hoo, what kind of person gets excited about antibiotics. One that wants to feel better. This weekend would normally be TITG® – our annual bike rally hosted by The Dunedin Chapter in Aviemore however it was cancelled due to Covid. Fortunately there was still time for fun and an alternative weekend in store for us down here in East Lothian. It still included some time with some Chapter members and the Harley – on Sunday I had a grand day out at Newhailes House.
As Alexandra and I arrived at Musselburgh the honest toon was looking very busy. Families walking in the direction of the estate of Newhailes House. This Sunday was a special day, there was an open day inviting members of the public. It was mainly a classic car event, with other super side lines. Dunedin had the Harley-Davidson® motorcycles, there were some sports bikes too, the fire brigade were there, the police, a fantastic array of stalls, and of course amazing classic cars. Plenty to keep us occupied.
Alexandra loves this tractor
As we walked into the grounds of the estate we could hear a very familiar sound. The roar of her Grandfather’s Fatboy. Parked in a line – the Dunedin Chapter Members and their Harley Davidson® Motorcycles. There was an eager bunch of kids waiting to sit on the bikes, lots of smiling faces. As we walked up towards Fattie we saw Steve giving a demonstration to a happy lad.
Alex and I walked round, thoroughly enjoyed the sights. Totally loved the cars, bikes, stalls, etc. Soaked in the atmosphere. Sat on motorbikes, looked at beautiful classic cars, clambered on tractors, enthusiastically stood in the long queue for the sit in the fire engine. We had a fabulous day all on our doorstep. I’m sure the Dunedin members enjoyed their day.
smile each and every day 