Tag: scotland

Thunder in the glens

by Lizbeth, posted in Emotions, Nets/carcinoid Syndrome, Uncategorized

Since I was a young child I have rode on motorcycles. The noise of the bike engines, the smell of exhaust fumes. Getting caught in the rain, remembering when travelling on a bike you can only carry small amounts. Familiar helmet flat hair. Years before health and safety set in; I would sit in front of my brother with my legs wrapped around the tank at 4 years of age and have a little ride on his motorcycle. Oh what wonderful memories. My first ride on a Harley-Davidson®, I would have been 13 years of age and on the back of a family friend. We called him Tam Harley. Steve and I have been riding together since we were 17. Started on a Suzuki, when we got married we had a Honda, we have had Kawasaki’s and BMW’s and now 39 years later since biking together we are our third Harley-Davidson®. For us Harley-Davidson riders the last weekend in August is a special one. We attend the fabulous bike rally in Aviemore Thunder in the glens.

As a child growing up bikes were prominent. The rally Thunder in the glens (TITG) hosted by Scottish HOG® Chapter Dunedin #9083. The rally is in Aviemore Scotland. For me this place is a very special, growing up I visited this town often and went skiing, wild swimming, hillwalking. Had so much fun skiing down those glistening white slopes. My heart beating so fast whilst I was racing downhill wishing I could beat the clock. Once again for me Aviemore brings passion, warmth exhilaration. The four seasons in an hour hasn’t changed. I have merely switched my walking or skiing clothing for biking gear and layer up and strip off as necessary. With the exception of Friday we are certainly blessed with warm and sunny weather for bank holiday weekend weather for Scotland. It was so lovely to go around in a t-shirt on Saturday after the mass ride out. And when we were up the mountains on Sunday the sun was shining. Thunder in the glens at its best.

The Three thousand sell out three day rally is in its 24th year. The mass ride out on the Saturday gets a great deal of participants on the pavement, in their gardens along the route, in the fields, etc. Families waving, smiling children. It is a happy day for many. The Sunday ride up the Cairngorm mountain is an emotional one for me, it brings back many happy memories of my skiing days. As well as a very sad occasion when I lost a friend on the mountain. The great thing about being able to sit on the back of the bike is you can sit and take in the view, which no one can deny on these routes is a beautiful one. And you can relax and think of all that has gone by over the years. The Sunday afternoon at the rally site there were charity rides. Where volunteers were giving rides around the site on their Harley-Davidson for a donation to charity. In the evenings there was an absolutely amazing choice of live music to choose from.

As well as my hubby being the Safety Officer. This year on the Mass Ride Out Steve was a road Marshall it gave me a chance to take photos when we were at the junction. I got a super opportunity to take photos of riders, some with their flags flying high, others waving and smiling.

While up at the rally you can stay on site, stay in a Macdonald Hotel or camp. Or choose to stay somewhere else and travel to the site. Whatever you choose you are usually guaranteed to have a super time. If you are away and want to listen to something on your phone, I found the perfect item; its one of the World’s Smallest Alexa Built-in Waterproof Mini speakers You can buy it from Amazon. You connect it to your phone, listen to it anywhere, anytime.

2023 will be the 25th anniversary will you be there?

The next event I am looking forward to is Halloween. Need to get some decorations. An ideal place is here  https://giftdelivery.co.uk/?ref=DrElizabeth or at Pomchick -Why don’t you have a look? You never know you may find something you like, treat yourself or someone you love.

Safety is paramount. Make sure the battery on your vehicle is in good order. The battery guys have great deals – check them out.

Absolutely great gift I will be buying next on my list is from Perfume UK

Have a look on this website. These products are fantastic. Earhubs.

Back on the Harley-Davidson®

by Lizbeth, posted in Tube Feeding, Uncategorized

The summer has been fairly kind to bikers this 2022 in Scotland. A great many dry sunny days and even on the cloudier days the sun has made an appearance on several occasions. For many friends they have been attending bike rallies, going off on super runs. No matter if it is long or short just the getting out for a while whether it is with a group of mates or a solo run. That feeling of freedom with not a care in the world and to cap it all the fabulous scenery that our country has to offer is most definitely worth taking to the road for. However I have had a medical issue with my gastrostomy tube and wasn’t feeling too great at the start of the season. Not like me at all but I welcomed my regular visit to one of my consultants. We had a long chat and it was decided I would get my lifesaving rig removed and a further procedure performed in hospital. Once this is done hoping I will be back on the Harley-Davidson® in no time.

True to his word I faced 13 medical professionals in the operating theatre just short of 4 weeks later. Getting the new tube fitted was most definitely daunting. The staff that look after me are absolutely amazing and when my heart rate dropped extremely low that the alarms were ringing they all remained so calm. Quietly I could here the radiologist say Elizabeth’s lips and feet are a lovely shade of blue. A nurse came and held my hand reassuringly and gently put a foil blanket over, ‘you are a tad cold’ she said and then continued to massage my feet. Once it was over and I was back sitting up and eager to go home one of the nurses that worked in London introduced me to a fabulous new dressing for around my tube. She gave me a pretty floral one and told me I could purchase them online. They are called G-tube dressings and are washable. Fabulous.

I got the talk about taking this easy when I got home. I so have to admit I never anticipated how long it would take for me to feel like ME. But what I can say is 4 weeks after normality started to set in. Since I have had it done I’ve enjoyed riding pillion three times;l. Gosh the relief I can have my feed running and it isn’t leaking out of me. Or more importantly the balloon can no longer explode inside my tummy. What a relief. I enjoy plenty of relaxation time; meditation and wellbeing top of the list. And of course a lot of reading snuggled into my beautiful labradors. As well as picking up a book and sifting through the pages which I so enjoy I enjoyed many books on Audible – Amazon do super deals including the first three months for 99p. This is one of the best and most used subscriptions I have taken on. If you enjoy reading and audio books you will absolutely love Audible If you don’t have Amazon Prime, it is worth joining. I wouldn’t be without it. Orders delivered next day, music, videos, etc. Superb prices. Fabulous.

The runs are very different, the first was just Steve and I tottering around our own area on my birthday on the 6th of August. We enjoy touring the Glide a little East Lothian Route, starting and finishing in Pencaitland. Taking in East Saltoun, Gifford and Haddington. The second was a ride to Stirling to meet up with some members from The Dunedin Chapter. A quick hop on the A1; stopped at Elginhaugh to meet up with Deke and then onto the bypass, joined and rode up the M9. A natter with fellow bikers and then back home. And finally a third run to Gullane to return granddaughters school bags.

The runs were enjoyable, the first most certainly very scenic and enjoyable for pillion view. Riding along single lane country roads – so easy on the eye. Chocolate box houses, overhung trees, lambs running in the fields. However on the ride to Stirling the smooth run up the dual carriageway of the A1 with the forth to my right. A perfect clear view of fife and the only distraction was the crops in the fields as they swayed gracefully and rhythmically as if they were dancing in time. The Sunday run to Gullane was a beautiful one. Living in East Lothian it is easy to take for granted such beauty; riding through the championship golf course I watch the golfers enjoy their activities and then take in the quality and beauty of the course. The greens looking in super shape. The course comprises of many shades of green and I think of my parents and the discussion we had many years ago as we looked at a globe and as a child I asked what is Gods colour Blue or Green.

These runs are in preparation to go to Aviemore with Steve. This year in Aviemore we will see many people with motorcycles, especially Harley-Davidsons® It will be lovely to go into the hive of activity. I never once thought when I was up in Aviemore every other week skiing, climbing and endlessly hill walking over a duration of many years would I be a granny riding pillion on a Harley-Davidson®.

I have been looking at books – quite fancy treating us to this one; Britain for Bikers

The Pink Pig The Battery Guys BTR Direct Sports

A walk in the sunshine

by Lizbeth, posted in Emotions, Nets/carcinoid Syndrome, Uncategorized

August was always a month of celebration, I was born on the 6th of the month in 1966 and married on the 22nd in 1986. However when my fabulous Mother died on the 9th of August in 2013 I felt like the life had been sucked out of me. And most certainly did not feel like celebrating. As the years have ticked on I have found I miss her more each day. The telephone rings first thing in the morning and I still expect it to be my Ma. My heart aches, I yearn to sit and chat and share a story or two like we always did. There is so much I want to tell her and the best place to do this is having a blether and a walk in the sunshine.

On Saturday I took a walk in the sunshine. I walked 100 yards from our house in the beautiful sunshine. Walked my Labrador Bella up the garden and let her run free in the field. I admired the beautiful field of everlasting flowers. I sat in the field looked at the stunning carpet of purple. Dancing were several rogue vibrant red poppies. Swaying back and forth, on looking at them if one had a vivid imagination such as mine they look like they are chatting on the dance floor. As I sat I thought of Mum, she would never want me to be sad. Think happy thoughts she would say. Smile and the world smiles with you. On the last day of her life she said to me I will never leave you and I believe her. I still feel her love.

I also feel her love through my beautiful grandchildren. They are very happy loving funny children. Our grandchildren most certainly keep me going and help me all my daily battle. I can now understand how my mother fought so hard when she was diagnosed with lung cancer and struggled on even in the darkest days. The shrieking laughter, the fingerprints on the glass cabinets they leave behind. The little stories they read to you are such a tonic.

I enjoy most of my time with my amazing labradors, very rarely there isn’t a dog at my feet. Bella was on the walk with me on Saturday. We look after our dogs and make sure they get well fed and appropriate supplements. One such supplement is Premium Omega Oil Capsules. You can buy them from Amazon and get them delivered straight to your door. I give both my labradors these super supplements. It comes in an easy to use pump and keeps their skin and coat in great condition. Buddy and Bella love the taste so its so easy to give.

There are many days I am shattered. Would I have life any other way? No not at all.

Have a grand day everyone. And thanks ever so much for taking the time to read this short blog post.

https://amzn.to/3Qj5wM9

Our bikers BBQ

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

Already we are half way through the year of 2022. Finally after the last few years of PPE, mask wearing during covid and lockdown we are getting some normality in our lives. Covid will never disappear however we are dealing with things and actually getting out meeting each other and it feels so good. Most of us have missed out on something in our lives, a celebration, graduation, that wonderful holiday we had planned. Sadly there has been difficult times where we have not been able to be together and sickness has kept us at arms length. I most certainly cannot fault the way I have been treated by our good old NHS. My treatment has never stopped or home visits from my District nurses right through the pandemic. Now that time has moved on many people are planning trips to other countries, including three of our friends from Switzerland. Whilst on their trip to Scotland we managed to finally have our bikers BBQ

I am fairly certain that covid will not leave us in a hurry and at the moment it is rearing its ugly head. With a notable increase in diagnosis again. However that is most likely to us all mixing and going out on adventures. A very large majority of us are vaccinated, it won’t stop us getting covid but should hopefully lower hospital admissions and death rates. I have been extremely grateful for the care I have had all the way through. The vaccines I have had. And the continued care and management I get with my cancer team. When I am up to it I enjoy time with buddies and going out on the Harley-Davidson® with my hubby.

The final week of June is always an eventful one for us. A birthday for Steve and brother in law Alan. So now three years later our buddies could finally ride their NC500 trip, travelling from Switzerland on their Harley-Davidson motorcycles. We were so happy to spend the final three days with them. Hear of their travels, have a BBQ at ours, go out to The Hard Rock Cafe in Edinburgh, and on their final day travel with them on their way to the ferry and visit Holy Island and Bamburgh Castle. What fun we all had.

The BBQ was great fun, we chatted, laughed, there was lovely food cooked by head chef Steve. A warm fire pit for those that felt the chill in the air. Steve, Deke and Ewan treated us to some tunes and kept us entertained. I am pretty sure everyone went home with full bellies and pretty satisfied and happy. Our dogs loved having everyone round.

The most important thing I have learnt from hitting the brick wall that day and hearing the words incurable is life is for living. I love and value my family, good friendship and spending some time to get out and see the sights can be energising. However, I do so enjoy taking time for myself. In the way of putting my feet up, sitting in silence and enjoying a jolly good rest with my most beautiful labradors, Buddy and Bella.

Frogs, nest building and watching by the pond

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

Nearing the end of March and we have sprung forward for daylight saving. Lost an hour in our bed did that cause any upset. Gosh no, woke up to a beautiful sunny Sunday morning, the fresh dew glistening on the blades of grass as I drew back the curtains. Six year old granddaughter Alexandra was getting her breakfast then off to dance. She attends a dance class every Sunday which she absolutely loves. For later in the day when she was back at ours it was arranged that we would go out on an adventure. This would include a drive to a Forrest Park and then there would be Frogs, nest building and watching by the pond.

My sister Hazel and her Granddaughter Lily came to mine and picked up Alexandra and me. We travelled the scenic route from our home in Boggs Holdings, Pencaitland to Glentress, Peebles in The Scottish Borders. We headed along familiar roads, up the granite hills, driving up the hills straight through the golf course in Innerleithen. Looking out the window at sheep and their newly born lambs dancing around the bushes.

As we approached the Glentress Centre we drove through the well sign posted road to the upper car park. Got out the car. And went on an adventure. Tummy’s were rumbling, so first of all it was time to feed the girls at Glentress Peel Cafe – this was a super place to have something to eat. Catering for all, adults, children, decent enough vegetarian option and dog friendly. Beautiful outlook with a pond just outside.

The pond was a great attraction. Alexandra and Lily excitedly watched the frogs swimming. Eagerly took in all the pond had to offer including frog spawn, insects galore and many plants. I have to admit I was in my element sitting on the bank watching and taking photographs.

We took the steady incline back up to the car park. The girls ran around laughing and playing catch. Alexandra collected a fairly large stone, the girls went on in search for moss and they started nest building. The Ranger walked by and smiled. A few minutes later she came back, as we were sitting at the picnic table she presented the girls with activity sheets and coloured pencils. She said well done on their nest building.

As the girls sat and drew pictures and coloured in I took in the breathtaking view. Watched some mountain bikers. And looked out onto the hills with the Glentress Forest Lodges that are available to rent. With the thought that one weekend that would be a lovely stay for a night or three.

All in all what a great way to spend a few hours on a Sunday.

© Dr Elizabeth M Johnston-Young

Thanks ever so much for reading, I hope you enjoyed it.

Today is rare disease day

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

It’s Monday morning like no other for most people. As I look out of my south facing cottage window I see grey clouds circling above the Lammermuir hills, on first glance its a bleak outlook. My telephone rings and anyone that knows me will guess that I am then preoccupied for at least an hour. Back to what I enjoy; I greedily set up my three apple devices with devoted labradors at my feet. As I lift my head to pick up a book I looked out of my ‘favourite view’ window. Was that a glimmer of sunshine trying to get through? As Bob Hope once said about Scotland it’s the only country he ever came to where he experienced 4 seasons not just in one day but in one hour. My yes, it was the clouds had lightened and the sun was beginning to show face. What looked like was going to be a rainy cold blustery day was turning out to be a fine day, perhaps not the best however one with promise and prospects, what more can you ask. Today is Monday 28th February 2022, today is Rare Disease Day.

I like to believe that the future for Rare Disease is parallel to today’s weather. One with good prospects and promise with a ray of sunshine to keep that frown upside down and remind us to smile each and everyday.

Living with a rare disease for most affects not only the person with the disease but those around them, whether they are family, friends or work colleagues. On getting a diagnosis, for many it is a life changing situation. Living with or getting diagnosed can be extremely hard to live with; physically, emotionally and financially. Some only get a very short life span. Others have many years of life and have to learn to manage. One big thing in common is many rare diseases are chronic. It isn’t always easy admitting you find life a struggle. However there are charities, hospital groups, clubs, various volunteer groups, etc and great deal of people affected benefit from support organisations; someone to talk to, somewhere that really understands, respite, etc, etc.

So what is a rare disease? 1 in 17 of us world wide will be affected by a rare disease at some time in our life. Carcinoid Syndrome is one of them. Huntington’s Disease,is a rare disease another is Cystic Fibrosis. The majority of rare diseases are chronic, progressive and genetic not curable. Only manageable to an extent. Living with a rare disease can feel very isolating and scary. Globally between 3.5% and 5.9% of the world population is affected with a rare disease. There are six thousand different diseases affecting 300 million people. In the UK, it is estimated that there are 3.5 million people affected by a rare disease.

Many patients with rare disease’s consult with more than one specialist. Often as many as five. Going to various outpatient clinics can take its toll not only on the patient but on the people around. The care at the hospital in the UK is free yes, however the patient has to get to the hospital for treatment, blood tests, scans, etc. Fuel in transport, or cost of public transport, the cost of eating out, etc etc. Then there is the physical cost to the patient. I was speaking with a consultant the other day and she spoke rather concerned that one of her young patients said she had 52 clinic appointments in the year. Equating to one per week. Yes she has an incurable rare disease, however she is also a student, desperate to pass her exams. The doctor sounded genuinely concerned for her patient; saying she thought this could affect the patient’s wellbeing on top of their condition.

What is Rare Disease Day? This is a world wide event for one day – always the last day in February. Celebrating Rare Disease’s. Promoting awareness. Sharing videos and experiences across the world. The aim of the day is to raise awareness, spread hope and solidarity and bring the worldwide community together. Hoping to improve access to treatment and medical representation for people and those affected with rare diseases.

It is go good to see so many people pull together for such an event globally. When these people are at home feeling isolated or trying to go out and are anxious they need to get their “big person” pants on. Life can be so difficult and cruel. It’s heartening to see so many people affected by rare diseases with glass half full attitudes. Medical staff fully behind them and organisations supporting in what needs done. Let’s hope for the day that we can get some treatment and you never know maybe even a cure for some of the diseases. However, for now let us manage the best we can.

A grand day out at Newhailes House

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

It was the bank holiday weekend and the sun was shining. For more than a year I could only fantasise of meeting up with friends or going out to events with fairly large numbers. The run up to the weekend was fairly difficult, my gastrostomy site was leaking, the pain set in and my skin became red raw. By Wednesday, treatment day with my nurses I was needing a swab taken and had a bit of a temperature. GP phoned me at 7.45am on Thursday morning to let me know antibiotics were ready for me. Woo hoo, what kind of person gets excited about antibiotics. One that wants to feel better. This weekend would normally be TITG® – our annual bike rally hosted by The Dunedin Chapter in Aviemore however it was cancelled due to Covid. Fortunately there was still time for fun and an alternative weekend in store for us down here in East Lothian. It still included some time with some Chapter members and the Harley – on Sunday I had a grand day out at Newhailes House.

As Alexandra and I arrived at Musselburgh the honest toon was looking very busy. Families walking in the direction of the estate of Newhailes House. This Sunday was a special day, there was an open day inviting members of the public. It was mainly a classic car event, with other super side lines. Dunedin had the Harley-Davidson® motorcycles, there were some sports bikes too, the fire brigade were there, the police, a fantastic array of stalls, and of course amazing classic cars. Plenty to keep us occupied.

Alexandra loves this tractor

As we walked into the grounds of the estate we could hear a very familiar sound. The roar of her Grandfather’s Fatboy. Parked in a line – the Dunedin Chapter Members and their Harley Davidson® Motorcycles. There was an eager bunch of kids waiting to sit on the bikes, lots of smiling faces. As we walked up towards Fattie we saw Steve giving a demonstration to a happy lad.

Alex and I walked round, thoroughly enjoyed the sights. Totally loved the cars, bikes, stalls, etc. Soaked in the atmosphere. Sat on motorbikes, looked at beautiful classic cars, clambered on tractors, enthusiastically stood in the long queue for the sit in the fire engine. We had a fabulous day all on our doorstep. I’m sure the Dunedin members enjoyed their day.



Element of Trust

by Lizbeth, posted in Emotions

From as long as I can remember my parents encouraged me to listen to others and always speak up to others and tell the truth no matter what has gone on. I have always taken this with me, passed this on to my children; said to them whatever has happened just tell me and we will deal with it. This has I believe gave us a trustworthy bond between parent and child no matter what their age. My lads are in their 30’s and we still talk, I trust them and they trust me. Growing up I knew I could go to my parents and talk to them about anything and everything, I always knew whatever I said to my Mum or Dad it would go no further. They were full of fabulous advice, helped me transform from teenager to adult. Who do I talk to now? I chat to a couple of friends about everything and anything, one in particular we know we can discuss ‘our laundry’ with each other. However, my ultimate bounce off and discussion partner is my hubby Steve, we are partners in life, super friends, chat about all and sundry and most importantly there is that Element of Trust

Steve and Me

So what is trust? I believe it is when someone can be relied on. Their honesty and integrity shines through. If I trust someone it means I believe they are who they say they are and they will always do what they say they will do. Most importantly what comes out of their mouth or from their written hand is the truth. They will not lie to me.

I pride myself in having a fabulous circle of friends, a beautiful family and most certainly a very close knit few that I value and trust with my life. Recently I have been disappointed with acquaintances. When I got told a lie from someone I actually never thought I would. That kick in the shins fairly knocked the stuffing out of me for several reasons………

There have been people in my life recently that have been irritable, non trustworthy, tit tattling to other people. These reprobates aren’t worth worrying about.

Building up trust: has not always made me popular but I’m a believer in say what you mean and mean what you say. Give people the benefit of the doubt. Remember the role of respect.

I have counted my blessings. Enjoyed being with friends and family. And relished that special time with my most loyal trustworthy labradors, Buddy and Bella; now they could teach a few humans a thing or two.

Buddy & Bella walk with steve
Bella & Buddy help steve

So for me, trust is important, especially in building up relationships. For those who know me, I’m a very happy honest human who enjoys life. Every day is precious and I am continuing to enjoy life with my beautiful family. On Saturday Steve took time from his busy business we spent a precious day together, Steve did a wonderful job gardening, Bella watching every step. Sunday we both took an amazing trip on Fattie our Harley-Davidson® to Moffat, St Mary’s Loch and Peebles with some friends. Sunday; beautiful scenery, lovely weather and great friends; a fabulous recipe for an amazing day out. Just the tonic to end the week.

Hello 2021

by Lizbeth, posted in Nets/carcinoid Syndrome, Tube Feeding, Uncategorized

For many 2020 has been a difficult year, and certainly for most a memorable one; it has been a year like no other I have known. My hubby and I spent Hogmanay at home on our own. Just the two of us with our beautiful Labradors. This was the first time ever we have been alone to bring in the year and say Hello 2021.

I must say although very different from our usual ceilidh, our last night of the year was a fun packed one. We took part in a family and friends Zoom quiz. Stephen organised it. A busy young Dad with three kids; Stephen and son Louis were quiz masters. We had participants from near and far. Laughing, joking and talking was definitely allowed. We didn’t come first in the quiz but did not disgrace ourselves. Looking forward to the next one.

We are one week in to the new year. Eventful already.

The balloon on my gastrostomy tube burst on Hogmanay. Wonderful efficient staff, it was changed immediately. Six days later the tube was loose, my dressing was drenched. My ever dedicated medics attended to me, yes the balloon on the just short of one week old tube had exploded once again. Nicola changed my tube and then gave me my octreotide injection. This was then a day for complete rest.

To be honest despite the feeling unwell, and the pain. I have enjoyed being home. Sitting by the open fire with my beautiful labradors. Writing and editing. We are in a second lockdown. Yes, it’s a worrying time and I so miss being able to go see my Dad. Strange times my family and friends not coming to my house for a visit. We have to remember these restrictions have been put in place for our own good, to prevent infection from spreading and a big plus point is that we have a vaccine that is getting rolled out to the general public. It will take a while but as time allows we will be able to go out more, visit and one day in the future live a “normal life”.

For some life has been more challenging. It may be they are a key worker and things are getting tough. The usual “go to” place has gone, and talking with others feels trivial. Please try and remember this when someone is looking a little more weary than normal, or talking less than usual, ask how they are – it goes a long way. When a person says they are fine, it doesn’t mean they are doing well.

During this lockdown children at present have to stay home and get home schooled. For many families this works well. But for some life is hard. In many homes there are more computers, laptops, tablets than human beings in the house. In other homes there is one unit in the home or perhaps none at all. When the children are home schooling they get work from their teachers, there are programs on television. The internet plays a vital part in a child’s education. Hence the importance of a piece of equipment to get on the World Wide Web. It’s heartbreaking to think that in this day and age of digital technology that some families lack that availability in their own homes. If you have a laptop, computer, iPad, tablet that’s surplus to requirements please think about handing it in for someone else to use. There is always someone in your area that can use it. You can find out more about recycling your products Here

Whilst the restrictions carry on I will continue with my Content Writing and Editing work. I am so lucky that I enjoy doing it. Photography is my passion. For the time being I am pleased enough with taking photographs in our garden, snapping images of things in the house, pointing and shooting my beloved Nikon at my Labradors, I think they feel like fashion models. Although my husband’s Harley is a great bike for taking photos of. Today was a grand day. I sat at my desk in front of my computer, did work on a newsletter. Then took some photos of a little visitor out our back garden. I’m sure he will be a regular visitor. A beautiful little Robin.


Robin sits on our back fence

More writing and less riding

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

As the days are getting shorter, temperature is dropping and the amount of ideal biking days for someone like me are few and far between. I find myself having more time to sit by our beautiful open fire and being grateful that I can reflect on events over the last few months. And hopefully look forward to what the world has in store for us all as the shortest day of the year will soon be here and then the days get longer, we have a vaccine thats getting rolled out for Covid. Since April I have only been out of the house for essential visits, such as the hospital. In total, I have been out of the house a total of 9 times since April. When the restrictions were relaxed I went out with with hubby and some friends from The Dunedin Chapter, under strict social distance for a Harley-Davidson® bike ride. At the beginning of September I took the position of Editor with The Dunedin Chapter, I so enjoy writing about the motorcycles, events, editing members articles, etc. Despite the fact I love being on the Harley-Davidson® I have got to admit I have benefited from having quiet time, time for me and certainly endured More writing and less riding.

The last few months have been fairly stressful health wise. Lavita – my gastrostomy tube has been playing up. I was in utter agony with my last change. The lump on my shoulder is giving me some grief and the pain in my humerus at times is unbearable. I remember 24 years ago I was at nuclear medicine with my Dad, he wasn’t feeling well at all, and he the pain he had was eleven out of ten. The consultant said to him I can clearly see you are in a lot of pain, however you are not complaining. My Dad said to him, I just close my eyes and take myself on a journey, close out the world and try and dream it all away. It doesn’t take it all away but it helps, my Dad told him. I took this with me that day. On the days I feel I can no longer cope, I think of my Dad and his journey.

While I am on my mind journey I can relax, take time to myself. I can think about what may be in the spring. Hoping to get out on our Harley. Have the boards put on the back for my little feet for comfort for those longer rides. Get the Nikon out and take some photos of our beautiful country. As usual the medics have been looking after me; appointments that cannot be met in person have been on the telephone or video call. So I am fairly confident as and when the weather breaks and getting out and about restriction levels allow us to travel around safely I will be able to ride pillion with my hubby.

The one benefit of being at home is I have been able to write a lot more. I find pleasure in writing for myself and other companies and organisations. Working as Editor for The Dunedin Chapter Scotland HOG® #9083 I have just completed my first quarterly Newsletter. I have been humbled at the amount of caring messages from members. Lovely emails and texts saying what a great Newsletter, so kind. Working on Newsletter was hard work, working to deadlines, fitting around others, editing folks work; taking out some parts that I know they would really want in but know that I was tight for space – all in a days work for the Editor. Yes there was lots to do, it took many hours, a lot of the time it was at an hour I haven’t been used to tapping my fingers on the keyboard on my beloved Apple. However when its a subject you are passionate about, the folks sending in articles are lovely and most importantly the team you are working alongside are supportive. It makes me feel proud to be party of a warm and friendly happy Harley Family.

On The Fatboy Aviemore, Scotland TITG® Mass Ride

Sponsoring a hearing dog

by Lizbeth, posted in Nets/carcinoid Syndrome, Uncategorized

A couple of years ago when my granddaughter then 2 had her first playdate at our house with my very close friend, Danielle’s daughter, Ella both girls played and had fun like all toddlers do. However as young as Alexandra was at the time she was caring and compassionate enough to notice that Ella was different from her. Ella is deaf, she has cochlear implants. Little did I know this first playdate would lead to us Sponsoring a hearing dog.

The girls at that young age played in the sitting room with toys and formed a bond. Two years later they are running up and down my hall laughing and shouting with dolls in their hands. When Ella left with her mum and dad Alexandra asked me about Danielle and us being friends. I told her we have been friends for a very long time, and told her you look after each other no matter what when you are good friends. I told her Danielle sends me messages and phones me to ask how I am. She visits. We all have fun, and now brings Ella to come see her. We spoke about Ella’s deafness, she said it must be horrible not being able to hear everything all the time Granny I am so sad for her. I told her not to be sad and look at how happy Ella is with her family and when she plays at ours. I think this helped.

It was raining on a Saturday afternoon and Alexandra was visiting with her Dad. She likes to be like Granny and type a story on the laptop. I had been on social media just prior to her going to use my laptop. She takes a seat beside me, she patiently waits till I close my pages. On the timeline of my facebook page there was an advertisement for Hearing Dogs for Deaf People. Oh look Granny, a Labrador like yours, but its black, says Alexandra. This stops me in my tracks. I look at what she is noticing. I close the page and let her type away.


Alexandra checks the new puppy over


Later that evening I go on the site Hearing Dogs for Deaf People and sponsor the black Labrador Winnie. This money will go towards training the puppy and will help change a deaf person’s life.

The Box of Gifts for Sponsorship



Ella and Alexandra


Alexandra & Ella


Ella & Alexandra ready to go in the garden


Alexandra now has a beautiful little cuddly pup with the familiar maroon jacket on. As soon as she opened the box she looked at all the paperwork quickly, lovely photos Granny. She quickly takes out the cuddly dog, runs along the hall and comes back with a stethoscope we need to check this puppy over. She loves the idea of having a notebook book and pen, so like my Mother. The certificate and postcards are brilliant. Alexandra has already looked up the website and seen other photos of Winnie and progression videos, her out walking, etc. It’s fantastic. Helping the charity, putting a good dog to work and most importantly helping someone who needs it – match them up with a dog and giving them valuable lifelines at times, for example Winnie will alert her new owner if the smoke alarm is going off, if there is a sound coming from the baby monitor.


Alexandra in her scrubs


Puppy gets his jags

I know how much I value my labradors. My lad, Buddy knows when my cancer is misbehaving. When my blood sugar has dropped too low. If my heart rate is wonky. Carries my feed items. Bella the companion Labrador, she is a treat to have, carries clothes to washing machine. Carries items along our 40 foot hall. Some days it can be a long walk for me.

If you have ever thought about sponsoring a dog I can highly recommend it. As someone who depends on a dog I know how valuable they are. I also live with a hubby that has issues with his eyes. He has had 10 surgeries to his eyes for detachment to his retina. He really is extraordinary. He pushes himself. Tries hard, still works, has a wonderful vision in life.

Bagged his first munro

by Lizbeth, posted in Uncategorized

Several months in since Covid first hit us. Our way of life has changed and we have began to look for a new normal. Living life at a different pace. Shopping, working, educating; finding a way that works for us to go about our business safely and hopefully happy. Social distancing – meeting with others safely. Trying our best to get that balance of seeing others, getting out in the outdoors but making sure that we are safe at the same time. We live in the country in our delightful detached cottage, no neighbours, not a street light on our little single track road, not even a cats eye. However, what we have noticed is an increase in people walking passed the house. Obviously they must be taking their daily exercise and what a lovely place to do it. There has been a lot of awful news since covid hit the headlines. Since the middle of March and the big lockdown happened, I feel there has been a lot of heartache and we have had many sad and tragic events to deal with. Couple of weeks into September and I got a message which made me smile from ear to ear, it was to let Auntie Lizzie know that 10 year old Louis Bagged his first munro.

I was beaming, a very proud great auntie. Louis had climbed Ben Chonzie with his Dad Stephen. Lindsay, my niece, and Stephen are fabulous parents. Okay I am biased, but they are. The three children all have handled the situation with coronavirus very well, they very much missed school and the youngest one Patrick started primary one and eldest Sophie started high school. Big year. For some time they could not attend church and that was another blow to the family. Louis is my son, Tony’s God son. All three children normally attend some sort of activities. Louis in particular loves to go to the football and support Celtic with his Grandad and Dad, he enjoys boxing and training at the local club. All this has been taken away. Lindsay and Stephen have not been down trodden. I have been sent the funniest videos. They have set up assault courses in their garden. The children ran round the course and one of the parents would set the stop watch. Their dog Lubo would join in. Fantastic family fun, while gaining exercise, stopping the boredom and learning a few things at the same time – pulse rate, etc. The children soon got the exercise bug and they began family walks, cycles and adventures. Until one day Stephen asked Louis if he would like to train to climb a munro. He explained what a munro was. He told him that a munro is a mountain that is over 3000 foot tall and that there are 282 across Scotland. They decided to attempt to climb Ben Chonzie together. Which they did. They took the dog, had an amazing day. I am so proud of Louis, to climb a munro is difficult, it takes stamina, this young chap was 10 years of age when he bagged his first munro.

Louis and Lubo at the summit of Ben Chonzie

And so the munro bagging continued. My son Stuart and fiancé Laura climbed Ben Chonzie. They had a wonderful time, it was unusual for them to be without the children and only have Hudson, the fox red Labrador with them. You can normally see them out cycling the bikes with the children in tow. Or all of them walking in the forrest all set for an adventure. How I love to get FaceTime calls telling me of the adventures they have had cycling along the forrest track or taking the dog a walk. So young and full of energy. I’m sure when 4 year old Alexandra’s legs are up to it she will be mad keen to get up a Scottish mountain. Get the camera out and take the most superb photographs of our beautiful country and amazing scenery.

Ben Chonzie

Stuart & Laura – Ben Chonzie

Laura & Hudson

A wee bit about Ben Chonzie. Gaelic name Beinn a’ Choinnich – meaning mossy mountain. Situated near Crieff in Perthshire. The great Scottish solitary mountain reaches a height of 3054 feet and rises between Strathearn and Loch Tay. Its a super first climb with a fairly straight forward heather clad route of 9 miles, which tends not to be steep but with rather more moderate inclines and leads to beautiful open country, which is ideal for this current situation when we are needing to social distance. Plenty of space for everyone, even the dogs.

All this talking of climbing has taken me back to pre neuroendocrine cancer days. Life before carcinoid syndrome and days with super duper energy when running up a mountain was Childs play. In the year of 2000 my husband Steve, my brother in law Alan, my sister Hazel (Louis’s gran) and quite a few of our friends were led up Ben Lawers by our friend Gordon Macleod. We raised quite a few quid for cancer charity that weekend. Great fun was had by all. It was the first May bank holiday weekend, I can remember sliding on the snow, what great fun we had. Lovely evening at the Kilin Hotel that night too, the Irish whisky after dinner I can recommend. https://www.killinhotel.com

Alan, Hazel, Steve & Me at the summit of Ben Lawers Year 2000

Louis loving his first climb